COVID-19 patient accounts of illness severity, treatments and lasting symptoms.
COVID-19 patient accounts of illness severity, treatments and lasting symptoms.
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DOI：
10.1038/s41597-021-01103-6
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发表时间：
2022-01-10
期刊：
影响因子：
9.8
通讯作者：
Hendrix CL
中科院分区：
文献类型：
--
作者：
Thomason ME;Werchan D;Hendrix CL
对COVID-19疾病和治疗的第一人称描述可以补充和丰富来自电子医疗或公共卫生记录的数据。有了患者报告的数据，就有可能确定深入的背景信息以及对疾病的行为和情绪反应。新型冠状病毒疾病患者报告（NCIPR）数据集包括1584名年龄在18至98岁之间的确诊COVID-19患者的完整调查回复。NCIPR的调查问题涉及症状、医疗并发症、家庭和医院治疗、持久影响、对疾病的焦虑、就业影响、隔离行为、疫苗相关行为和影响以及其他家庭/家庭成员的疾病。其他问题涉及财务安全、感知歧视、流行病影响（关系、社会、压力、睡眠）、健康史和应对策略。患者对疾病、环境和心理社会影响的详细报告，接近感染时间并考虑到人口变化，对于从感染者的角度了解与大流行相关的公共卫生有意义。描述报告数据的机器可访问元数据文件：10.6084/m9.figshare.17057822
First-person accounts of COVID-19 illness and treatment can complement and enrich data derived from electronic medical or public health records. With patient-reported data, it is uniquely possible to ascertain in-depth contextual information as well as behavioral and emotional responses to illness. The Novel Coronavirus Illness Patient Report (NCIPR) dataset includes complete survey responses from 1,584 confirmed COVID-19 patients ages 18 to 98. NCIPR survey questions address symptoms, medical complications, home and hospital treatments, lasting effects, anxiety about illness, employment impacts, quarantine behaviors, vaccine-related behaviors and effects, and illness of other family/household members. Additional questions address financial security, perceived discrimination, pandemic impacts (relationship, social, stress, sleep), health history, and coping strategies. Detailed patient reports of illness, environment, and psychosocial impact, proximal to timing of infection and considerate of demographic variation, is meaningful for understanding pandemic-related public health from the perspective of those that contracted the disease. Machine-accessible metadata file describing the reported data: 10.6084/m9.figshare.17057822
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