Public contributors' preferences for the organization of remote public involvement meetings in health and social care: A discrete choice experiment study.

Public contributors' preferences for the organization of remote public involvement meetings in health and social care: A discrete choice experiment study.
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DOI:
10.1111/hex.13641
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发表时间:
2023-02
影响因子:
3.2
通讯作者:
Frith, Lucy
Frith, Lucy
中科院分区:
医学2区
文献类型:
--
作者:
Loria-Rebolledo, Luis E.;Watson, Verity;Hassan, Shaima;Gabbay, Mark;Tahir, Naheed;Hossain, Muhammad;Goodall, Mark;Frith, Lucy

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2019冠状病毒病扩大了远程工作的使用范围,以吸引公共贡献者参与卫生和社会护理研究。这些变化有可能限制一些公共贡献者参与患者和公众参与和参与(PPIE)的能力。因此,必须了解公共捐助者的偏好,以便以最佳方式组织远程工作,鼓励而不是阻止参与。我们通过在线调查使用经济偏好启发工具--离散选择实验(VCE)来估计公共贡献者对远程会议不同功能的偏好和权衡。这些功能是由以前的研究所提供的,包括与公共贡献者相关的远程会议的各个方面,并且可以由PPIE组织者进行更改。我们发现,公共贡献者更有可能参与一个PPIE项目,涉及远程会议,如果他们得到有关参与的反馈;允许他们在会议期间关闭摄像机,如果/当需要时离开;在2.5小时内;在工作时间内组织,并由主持人主持,可以确保每个人都做出贡献。这些特征的不同组合可能导致估计的项目参与率从23%到94%不等。在规划PPIE和吸引公众贡献者时,我们建议将资源集中在培训主持人和确保公众贡献者收到会议反馈上。项目资源的分配应使项目参与最大化。我们为那些从事公众参与工作的人提供建议,并组织会议讨论如何分配资源,如时间和财政支持。这些是基于参与卫生和社会保健研究的现有公共捐助者的偏好。我们有一个公共贡献者(纳希德·塔希尔)作为UKRI ESRC申请的资助共同申请人,并在项目的每个阶段参与西北海岸应用研究合作组织(NWC ARC)公共顾问论坛的成员。调查设计是从与NWC ARC公共贡献者举行的三个焦点小组获悉的。根据与公共贡献者的六次一对一会议的结果,该调查进一步编辑和改进。
Covid‐19 expanded the use of remote working to engage with public contributors in health and social care research. These changes have the potential to limit the ability to participate in patient and public involvement and engagement (PPIE) for some public contributors. It is therefore important to understand public contributors' preferences, so that remote working can be organized in an optimal way to encourage rather than discourage participation. We use an economic preference elicitation tool, a discrete choice experiment (DCE), via an online survey, to estimate public contributors’ preferences for and trade‐offs between different features of remote meetings. The features were informed by previous research to include aspects of remote meetings that were relevant to public contributors and amenable to change by PPIE organizers. We found that public contributors are more likely to participate in a PPIE project involving remote meetings if they are given feedback about participation; allowed to switch their camera off during meetings and step away if/when needed; were under 2.5 h long; organized during working hours, and are chaired by a moderator who can ensure that everyone contributes. Different combinations of these features can cause estimated project participation to range from 23% to 94%. When planning PPIE and engaging public contributors, we suggest that resources are focused on training moderators and ensuring public contributors receive meeting feedback. Project resources should be allocated to maximize project participation. We provide recommendations for those who work in public involvement and organize meetings on how resources, such as time and financial support, should be allocated. These are based on the preferences of existing public contributors who have been involved in health and social care research. We had a public contributor (Naheed Tahir) as a funded coapplicant on the UKRI ESRC application and involved members of the North West Coast Applied Research Collaboration (NWC ARC) Public Advisor Forum at every stage of the project. The survey design was informed from three focus groups held with NWC ARC public contributors. The survey was further edited and improved based on the results of six one‐to‐one meetings with public contributors.
DOI: 10.1016/j.jval.2012.08.2223
发表时间: 2013-01-01
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