Effects of undergoing multiplex genetic susceptibility testing on parent attitudes towards testing their children.

Effects of undergoing multiplex genetic susceptibility testing on parent attitudes towards testing their children.
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DOI:
10.1007/s12160-013-9553-z
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发表时间:
2014-06
影响因子:
3.8
通讯作者:
McBride, Colleen M.
McBride, Colleen M.
中科院分区:
心理学2区
文献类型:
--
作者:
Madeo, Anne C.;Tercyak, Kenneth P.;Tarini, Beth A.;McBride, Colleen M.

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父母可以通过为孩子进行多重遗传易感性检测(MGST)来了解自己的常见疾病风险信息。前瞻性评估接受MGST的父母是否向孩子透露了他们的测试结果,旨在改变孩子的健康习惯或让孩子接受测试。80名选择免费MGST的父母在接受MGST之前完成了一项关于家中儿童的在线调查,并在收到结果三个月后进行了一次后续电话调查。很少有父母(21%)向孩子透露结果。进行MGST与改变孩子健康习惯的意图无关,但确实增加了父母对孩子进行测试的意愿。更大的意愿,以测试孩子与积极的态度对儿科基因检测和意图改变孩子的健康习惯。接受MGST的经验对父母的看法或行为有关他们的未成年子女的影响不大。
Parents may pursue common disease risk information about themselves via multiplex genetic susceptibility testing (MGST) for their children. To prospectively assess whether parents who received MGST disclosed their test results to their child, intended to change the child’s health habits or have the child tested. Eighty parents who opted for free MGST completed an online survey about a child in their household before undergoing MGST and a follow-up telephone survey three months after receiving results. Few parents (21%) disclosed results to the child. Undergoing MGST was unrelated to intentions to change the child’s health habits but did increase parental willingness to test the child. Greater willingness to test a child was associated with positive attitudes toward pediatric genetic testing and intentions to change the child’s health habits. The experience of receiving MGST had little impact on parents’ perceptions or behaviors related to their minor child.
DOI: 10.2196/jmir.1587
发表时间: 2010-09-29
影响因子: 7.4
作者:
Kaphingst KA;McBride CM;Wade C;Alford SH;Brody LC;Baxevanis AD
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期刊: Genetics in medicine : official journal of the American College of Medical Genetics
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