Parent and Family Functioning in Pediatric Inflammatory Bowel Disease.

Parent and Family Functioning in Pediatric Inflammatory Bowel Disease.
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DOI:
10.3390/children7100188
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发表时间:
2020-10-17
期刊:
Children (Basel, Switzerland)
影响因子:
--
通讯作者:
Reed B
Reed B
中科院分区:
其他
文献类型:
--
作者:
Cushman G;Shih S;Reed B

文献摘要

参考文献

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尽管小儿炎症性肠病(IBD)的影响不仅限于患者,还影响到其父母和家人,但以往文献的重点主要集中在调查患者的医疗和社会心理功能上,而很少考虑家庭系统。鉴于父母和家庭成员在成功控制疾病和照顾孩子方面所发挥的作用,全面了解儿童 IBD 背景下父母和家庭的功能非常重要。当前的综述论文汇总了有关父母和家庭功能的实证研究,包括与规范样本、其他疾病组的比较,以及功能与儿童心理社会和健康结果的关系。现有关于儿童 IBD 的父母和家庭的文献主要集中在养育压力、父母社会心理功能、父母生活质量和家庭功能等变量上。摘要研究结果阐明了受 IBD 影响的父母、家庭和儿童之间的复杂关系,并强调了评估儿童 IBD 中父母和家庭功能的重要性。当前的综述还提供了对临床实践的启示,指出了现有文献的局限性,并为未来的研究提供了建议。
Although the impact of pediatric inflammatory bowel disease (IBD) extends beyond the patient to their parents and families, the focus of previous literature has largely been on investigating the patient’s medical and psychosocial functioning, with less consideration of the family system. Having a comprehensive understanding of parent and family functioning within the context of pediatric IBD is important given the role parents and family members have in the successful management of the disease and caring of the child. The current review paper aggregates the empirical research regarding parent and family functioning, including comparisons to normative samples, other illness groups, and how functioning relates to child psychosocial and health outcomes. Extant literature on parents and families in pediatric IBD has largely focused on the variables of parenting stress, parent psychosocial functioning, parent quality of life, and family functioning. Summary findings elucidate the complex relationships between parents, families, and children affected by IBD and highlight the importance of assessing parent and family functioning within pediatric IBD. The current review also offers implications for clinical practice, notes the limitations of the present literature, and provides recommendations for future research.
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