Measuring dementia carers' unmet need for services--an exploratory mixed method study.
Measuring dementia carers' unmet need for services--an exploratory mixed method study.
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DOI：
10.1186/1472-6963-10-122
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发表时间：
2010-05-13
影响因子：
2.8
通讯作者：
Robinson A
中科院分区：
文献类型：
--
作者：
Stirling C;Andrews S;Croft T;Vickers J;Turner P;Robinson A
为了确保痴呆症患者的照顾者得到支持，社区服务越来越多地使用照顾者(照顾者)负担的衡量标准来评估未得到满足的需求。本研究运用布拉德肖的需要分类法，探讨照顾者负担(规范性需要)、服务使用(表达的需要)和照顾者声明的需要(感觉需要)之间的联系。这项混合方法的探索性研究比较了20对社区居住的照顾者/照顾者-接受者对照顾者负担的测量与社区服务的接受和未满足的需求。在GHQ-30上测量照顾者对更多服务的感觉需要的简单的单项测量与照顾者的压力显著相关。定性数据显示，除了与护理角色有关的压力外，照顾者还有许多潜在的压力源。我们发现，照顾者使用居家休息与照顾者的认知和功能状态之间存在显著的等级相关性(p=0.01)，这可能与照顾者对照顾者的警觉性、努力和孤立配偶的要求增加有关。除此之外，照顾者的负担或压力与提供的服务水平之间没有统计学上的显著关系。当照顾者感到压力或抑郁时，他们可以认识到他们希望从服务中获得更多帮助，即使照顾者负担和照顾者地位的衡量标准并不清楚表明未得到满足的服务需求。一个旨在引起照顾者感觉到的需求的问题可能是一个更好的服务需求指标，也是认识到痴呆症患者照顾者日益增长的压力的危险信号。对服务需求的评估应该认识到照顾者负担措施的错误，因为照顾者压力可能不仅来自照顾痴呆症患者，而且可能因其他生活情况而显著加剧。
To ensure carers of people with dementia receive support, community services increasingly use measures of caregiver (carer) burden to assess for unmet need. This study used Bradshaw's taxonomy of need to explore the link between measures of carer burden (normative need), service use (expressed need), and carer's stated need (felt need). This mixed method exploratory study compared measures of carer burden with community services received and unmet needs, for 20 community-dwelling carer/care-recipient pairs. A simple one-item measure of carers' felt need for more services was significantly related to carer stress as measured on the GHQ-30. Qualitative data showed that there are many potential stressors for carers, other than those related to the care-giving role. We found a statistically significant rank correlation (p = 0.01) between carer's use of in-home respite and the care-recipient's cognitive and functional status which is likely to have been related to increased requirement for carer vigilance, effort and the isolation of spouse carers. Otherwise, there were no statistically significant relationships between carer burden or stress and level of service provision. When carers are stressed or depressed, they can recognise that they would like more help from services, even if measures of carer burden and care recipient status do not clearly indicate unmet service needs. A question designed to elicit carer' felt need may be a better indicator of service need, and a red flag for recognising growing stress in carers of people with dementia. Assessment of service needs should recognise the fallibility of carer burden measures, given that carer stress may not only come from caring for someone with dementia, but can be significantly compounded by other life situations.
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影响因子：
3.4
作者：
Croog, SH;Burleson, JA;Baume, RM
通讯作者：
Baume, RM
影响因子：
2.7
作者：
McConaghy, Ronelle;Caltabiano, Marie Louise
通讯作者：
Caltabiano, Marie Louise
影响因子：
3.4
作者：
Cuijpers, P
通讯作者：
Cuijpers, P
影响因子：
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作者：
Brodaty, H;Thomson, C;Fine, M
通讯作者：
Fine, M
影响因子：
2.4
作者：
Robinson, Andrew;Emden, Carolyn;Vickers, James
通讯作者：
Vickers, James