COMPLETE (Communication Plan Early Through End of Life): Development of a Research Program to Diminish Suffering for Children at End of Life.
COMPLETE (Communication Plan Early Through End of Life): Development of a Research Program to Diminish Suffering for Children at End of Life.
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DOI：
10.1016/j.pedn.2021.08.010
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发表时间：
2021-11
期刊：
影响因子：
--
通讯作者：
Moody KM
中科院分区：
文献类型：
--
作者：
Hendricks-Ferguson V;Newman AR;Brock KE;Haase JE;Raybin JL;Saini S;Moody KM
虽然在过去75年中，患有癌症的儿童的总体存活率大大提高，但癌症仍然是儿童和青少年疾病死亡的主要原因。此外，尽管在医疗和护理方面取得了许多进步，但患有癌症的儿童在其患病过程中，特别是在生命的最后阶段，仍然经历着巨大的身体和精神痛苦。尽管许多家长、青少年和年轻成年患者认为家中是他们首选的死亡地点，但儿童在EOL接受高强度医疗干预（例如插管、重症监护病房入院）的比例很高。临终关怀有可能减轻EOL的痛苦，并促进家庭死亡，然而，大多数儿童仍然在没有临终关怀的情况下死于急性护理环境。许多障碍妨碍在EOL期的癌症儿童及时登记安宁疗护。本报告描述了缓和疗护/EOL沟通干预的发展和测试，旨在克服其中一些障碍，并随后改善癌症儿童及其父母的EOL结果（即，早期临终关怀登记，减少高强度医疗干预的使用，减少疼痛和痛苦）（即，减少情绪困扰和不确定性，提高希望和医疗保健满意度）。
While overall survival has improved significantly for children with cancer over the past 75 years, cancer remains the leading cause of death from disease among children and adolescents. Further, despite the many advances in medical and nursing care, children with cancer still experience significant physical and emotional suffering over the course of their illness, especially at the end of life (EOL). Children endure significant rates of high-intensity medical interventions (e.g., intubation, intensive care unit admission) at the EOL despite many parents, adolescents, and young adult patients identifying home as their preferred location of death. Hospice care has the potential to ease suffering at the EOL and facilitate home deaths, and yet, most children still die in acute care settings without hospice care. Numerous barriers prevent timely enrollment in hospice among children with cancer who are in the EOL period. This report describes the development and testing of a palliative care/EOL communication intervention designed to overcome some of these barriers and subsequently improve EOL outcomes (i.e., earlier hospice enrollment, less use of high-intensity medical interventions, reduced pain and suffering) among children with cancer and their parents (i.e., less emotional distress and uncertainty, improved hope and healthcare satisfaction).
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影响因子：
4.2
作者：
Czajkowski, Susan M.;Powell, Lynda H.;Charlson, Mary E.
通讯作者：
Charlson, Mary E.
影响因子：
2.6
作者：
Hendricks-Ferguson, Verna L.;Haase, Joan E.
通讯作者：
Haase, Joan E.
DOI：
10.12968/ijpn.2007.13.11.27587
发表时间：
2007-01-01
影响因子：
1
作者：
Hendricks-Ferguson, Verna L.
通讯作者：
Hendricks-Ferguson, Verna L.
影响因子：
1.7
作者：
Hendricks-Ferguson, Verna L.;Pradhan, Kamnesh;Haase, Joan E.
通讯作者：
Haase, Joan E.
影响因子：
1.7
作者：
Hendricks-Ferguson, Verna L.;Kane, Javier R.;Haase, Joan E.
通讯作者：
Haase, Joan E.