Perceptions of Autism Spectrum Disorder (ASD) Etiology among Parents of Children with ASD.
Perceptions of Autism Spectrum Disorder (ASD) Etiology among Parents of Children with ASD.
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DOI：
10.3390/ijerph18136774
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发表时间：
2021-06-24
影响因子：
--
通讯作者：
Chen LS
中科院分区：
文献类型：
--
作者：
Chen WJ;Zhang Z;Wang H;Tseng TS;Ma P;Chen LS
背景：自闭症谱系障碍（ASD）是一种神经发育障碍，其特征是社交沟通缺陷和受限或重复行为。父母对孩子自闭症谱系障碍病因的看法可能会影响服务提供者与客户的关系、父母与孩子之间的联系，以及自闭症谱系障碍儿童的预后、治疗和管理。因此，本研究旨在调查自闭症谱系障碍儿童家长对自闭症谱系障碍病因的看法。方法：在德克萨斯州招募了 42 名被诊断患有自闭症谱系障碍 (ASD) 儿童的家长。半结构化访谈是单独进行的。所有采访均被记录并逐字转录，以利用 NVivo 12.0（QSR International，唐卡斯特，澳大利亚）进行内容分析。结果：内容分析确定了有关父母对自闭症谱系障碍病因的看法的以下主题：遗传因素（40.5％）、环境因素（31.0％）、怀孕或分娩期间发生的问题（23.8％）、疫苗接种（16.7％）、其他健康问题（7.1％）、怀孕时父母年龄（4.8％）以及精神或宗教因素（2.4％）。结论：家长对自闭症谱系障碍病因的看法多种多样，但一些观点，例如疫苗接种和精神或宗教因素，并没有科学证据。卫生专业人员和研究人员可以利用这些发现为患有自闭症谱系障碍儿童的父母制定和提供有针对性的教育。我们的研究结果还支持政策制定者开展旨在提高家长自闭症谱系障碍意识和知识的活动。
Background: Autism spectrum disorder (ASD) is a neurodevelopmental disorder characterized by social communication deficits and restricted or repetitive behaviors. Parental perceptions of the etiology of their child’s ASD can affect provider–client relationships, bonding between parents and their children, and the prognosis, treatment, and management of children with ASD. Thus, this study sought to examine the perceptions of ASD etiology of parents of children with ASD. Methods: Forty-two parents of children diagnosed with ASD were recruited across Texas. Semi-structured interviews were conducted individually. All interviews were recorded and later transcribed verbatim for content analysis utilizing NVivo 12.0 (QSR International, Doncaster, Australia). Results: The content analysis identified the following themes regarding parental perceptions of ASD etiology: Genetic factors (40.5%), environmental factors (31.0%), problems that occurred during pregnancy or delivery (23.8%), vaccinations (16.7%), other health problems (7.1%), parental age at the time of pregnancy (4.8%), and spiritual or religious factors (2.4%). Conclusions: The parental perceptions of ASD etiology were diverse, but several views, such as vaccinations and spiritual or religious factors, were not based on scientific evidence. Health professionals and researchers can use these findings to develop and provide targeted education to parents who have children with ASD. Our findings also support policymakers in developing campaigns designed to increase parental ASD awareness and knowledge.
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影响因子：
5.6
作者：
Robert C;Pasquier L;Cohen D;Fradin M;Canitano R;Damaj L;Odent S;Tordjman S
通讯作者：
Tordjman S
DOI：
10.1097/01.jaa.0000451873.94189.56
发表时间：
2014-08-01
影响因子：
1.1
作者：
Clift, Kathy;Rizzolo, Denise
通讯作者：
Rizzolo, Denise
影响因子：
1.9
作者：
Mercer, L;Creighton, S;Lewis, M E S
通讯作者：
Lewis, M E S
影响因子：
5.5
作者：
Ruiz, Jeanette B.;Bell, Robert A.
通讯作者：
Bell, Robert A.
影响因子：
5.5
作者：
Goin-Kochel, Robin P.;Fombonne, Eric;Boom, Julie A.
通讯作者：
Boom, Julie A.