Internet-based interventions for cancer-related distress: exploring the experiences of those whose needs are not met.

Internet-based interventions for cancer-related distress: exploring the experiences of those whose needs are not met.
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DOI:
10.1002/pon.3443
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发表时间:
2014-04
期刊:
影响因子:
3.6
通讯作者:
Owen, Jason E.
Owen, Jason E.
中科院分区:
医学2区
文献类型:
--
作者:
Gorlick, Amanda;Bantum, Erin O'Carroll;Owen, Jason E.

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对基于互联网的干预措施的参与程度普遍较低。了解用户对这些干预措施的体验是提高功效的关键。尽管定性方法非常适合这一目的,但在这一领域进行的定性研究很少。在本研究中,我们评估了基于互联网的干预在癌症幸存者中的经验,这些幸存者很少使用干预。对25名癌症幸存者进行了半结构化访谈,他们参与程度最低(即,在网站上总共花了大约1个小时),并进行了在线干预,即health-space.net。干预是一个为期12周的,促进支持小组与社会和信息组件。访谈采用解释性描述设计进行分析。三大类,包括18个具体的主题,确定了从采访中,其中包括与类似的其他连接,个人的期望,并与网站的问题(K= 0.88)。“类似的其他人”类别反映了与相关幸存者互动的重要性(即,相同的癌症类型),“个人期望”类别反映了参与者对使用在线干预的期望的重要性(即,个人相关信息),而“研究中心的问题”类别反映了研究程序的重要性(即,网站结构)。数据表明,参与程度最低的参与者对基于互联网的干预措施的需求和偏好具有很高的可变性。使用定性方法来确定这些需求并将其纳入下一代干预措施,有可能增加参与和成果。目前的研究为今后的研究提供了基础,以确定幸存者的需求,并为更好地满足这些需求提出建议。
Low levels of engagement in Internet-based interventions are common. Understanding users' experiences with these interventions is key to improving efficacy. Although qualitative methods are well-suited for this purpose, few qualitative studies have been conducted in this area. In the present study, we assessed experiences with an Internet-based intervention among cancer survivors who made minimal use of the intervention. Semi-structured interviews were conducted with 25 cancer survivors who were minimally engaged (i.e., spent around 1 hour total on website) with the online intervention, health-space.net. The intervention was a 12-week, facilitated support group with social and informational components. Interviews were analyzed using an interpretive descriptive design. Three broad categories, consisting of 18 specific themes, were identified from the interviews, which included connecting with similar others, individual expectations, and problems with the site (K= 0.88). The “similar others” category reflected the significance of interacting with relatable survivors (i.e., same cancer type), the “individual expectations” category reflected the significance of participants' expectations about using online interventions (i.e., personally relevant information), and the “problems with the site” category reflected the significance of study procedures (i.e., website structure). The data indicate that minimally-engaged participants have high variability regarding their needs and preferences of Internet-based interventions. Using qualitative methodologies to identify and incorporate these needs into the next generation of interventions has the potential to increase engagement and outcomes. The current study provides a foundation for future research to characterize survivors' needs and offer suggestions for better meeting these needs.
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