When a mother has cancer: strains and resources of affected families from the mother's and father's perspective - a qualitative study.
When a mother has cancer: strains and resources of affected families from the mother's and father's perspective - a qualitative study.
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DOI：
10.1186/s12905-018-0562-8
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发表时间：
2018-05-25
期刊：
影响因子：
--
通讯作者：
Bergelt C
中科院分区：
文献类型：
--
作者：
Inhestern L;Bergelt C
当母亲患有癌症时，有未成年子女的家庭面临着所有家庭成员的重大挑战。根据家庭适应和适应反应模型（FAAR），癌症家庭的压力和资源的失衡可以作为家庭适应状况的重要指标。因此，本研究的目的是从母亲和父亲的角度探讨癌症母亲的家庭压力和资源。我们对29名被诊断患有癌症的母亲和10名父亲进行了半结构化访谈。这些数据被逐字转录，并使用主题分析进行分析。母亲和父亲都报告说，这种疾病对社会和实际变化以及强烈的情绪反应产生了普遍影响。父母报告了关于其父母角色的具体压力和压力源，例如作为父母的自我概念的变化或对子女的恐惧和担忧。许多母亲还经历了内疚感。所有的父亲都报告说责任和压力增加了。生病和健康的父母都报告了他们孩子的压力和压力源，例如父母观察到他们孩子的行为变化和强烈的情绪反应。家庭在外部、家庭和个人层面上利用各种资源和应对战略来应对疾病的挑战。他们报告说，支助网络、灵活的工作时间和称职的医务人员都很有帮助。此外，在家庭一级，如家庭时间、公开交流和儿童本身被认为是重要的资源。在自我层面上，父母报告了为未来设定小目标和为自己留出时间等资源。我们的研究结果表明，患病和健康的父母及其子女面临大量和多样的压力源和压力。同时，父母在外部、家庭和自我层面上使用不同的资源和应对策略。当母亲患有癌症时，对压力和资源的评估可能是家庭支持需求的重要指标。加强和激活资源和应对策略，可以帮助家庭更好地处理这种情况，并可以防止家庭成员的适应不良。
When a mother has cancer, families with minor children are confronted with major challenges for all family members. According to the Family Adjustment and Adaptation Response (FAAR) Model, the (im) balance between strains and resources of families affected by cancer can be an important indicator on the families’ adjustment to the situation. Hence, this study aims to explore the strains and resources of families of mothers with cancer from the mother’s and father’s perspective. We conducted semi-structured interviews with 29 mothers diagnosed with cancer and ten fathers. The data was transcribed verbatim and analyzed using thematic analysis. Both, mothers and fathers, reported a general impact of the disease regarding social and practical changes as well as strong emotional reactions. Parents reported specific strains and stressors regarding their parental role e.g. changes in the self-concept as a parent or fears and concerns about the children. Many mothers additionally experienced feelings of guilt. All fathers reported an increase of responsibilities and pressure. Both, the ill and healthy parent, reported strains and stressors for their children, e.g. parents observed behavioral changes and strong emotional reactions in their children. Families used a variety of resources and coping strategies on external, family and intrapersonal levels to encounter the challenges of the disease. They reported that e.g. support networks, flexible working hours and competent medical staff were helpful. Moreover, on the family level e.g. family time, open communication and the children themselves were considered to be important resources. On the intrapersonal level, parents reported resources such as setting small aims for the future and taking time for oneself. Our findings indicate a high amount and diversity of stressors and strains for the ill and healthy parent and for their children. At the same time, parents use diverse resources and coping strategies on external, family or intrapersonal level. The assessment of strains and resources may be an important indicator for the support needs of families when a mother has cancer. Enhancing and activating resources and coping strategies may help the families to manage the situation better and may prevent maladjustment in the family members.
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影响因子：
3.6
作者：
Forrest, Gillian;Plumb, Caroline;Stein, Alan
通讯作者：
Stein, Alan
影响因子：
1.3
作者：
Buchbinder, Mara;Longhofer, Jeffrey;McCue, Kathleen
通讯作者：
McCue, Kathleen
DOI：
10.1055/s-0032-1301899
发表时间：
2012-02-01
影响因子：
0.9
作者：
Goetze, Heide;Weissflog, Gregor;Ernst, Jochen
通讯作者：
Ernst, Jochen
影响因子：
2.1
作者：
Semple, C. J.;McCaughan, E.
通讯作者：
McCaughan, E.
影响因子：
2
作者：
Novick, Gina
通讯作者：
Novick, Gina