Research Ethics in Behavioral Interventions Among Special Populations: Lessons From the Peer Approaches to Lupus Self-Management Study.
Research Ethics in Behavioral Interventions Among Special Populations: Lessons From the Peer Approaches to Lupus Self-Management Study.
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DOI：
10.1016/j.amjms.2017.08.021
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发表时间：
2018-03
期刊：
影响因子：
--
通讯作者：
Williams EM
中科院分区：
文献类型：
--
作者：
Faith TD;Egede L;Williams EM
涉及属于特殊人群的同质参与者队列的研究必须考虑招募和保护受试者。本研究分析了狼疮自我管理项目的同伴方法中所做的伦理考虑，该项目对患有系统性红斑狼疮的非裔美国女性进行了同伴指导干预试点测试。描述了项目开始时所做的考虑，并给出了其理由/推理。通过分析干预后焦点小组的反馈和导师的日志，讨论了对项目结果和参与者满意度的影响。反馈表明了招募和培训有能力的导师、研究人员持续接触以避免不良事件、避免恐惧或不信任的重要性，以及在导师和受训者配对时必须仔细考虑的重要性。参与者的反馈还表明，必须谨慎处理敏感话题，以防止痛苦和不满。应用从这项工作中吸取的经验教训以及被证明是成功的考虑因素可以改善特殊人群行为干预的情境化和道德行为，从而改善对历史上服务不足的个人的定制和可接受性。
Research involving a homogenous cohort of participants belonging to a special population must make considerations to recruit and protect the subjects. This study analyses the ethical considerations made in the Peer approaches to Lupus Self-Management project which pilot tested a peer mentoring intervention for African American women with systemic lupus erythematosus. Considerations made at the outset of the project are described and their justifications/reasoning are given. Through analysis of feedback from a post intervention focus group and mentors’ logs, implications on program outcomes and participant satisfaction are discussed. Feedback indicated the importance of recruiting and training capable mentors, consistent contact from study staff to avert adverse events and avert fear or mistrust, and careful consideration that must go into the pairing of mentors and mentees. Participant feedback also indicated that sensitive topics must be addressed carefully to prevent distress and dissatisfaction. Applying the lessons learned from this work as well as the considerations that proved successful may improve the contextualization and ethical conduct of behavioral interventions in special populations resulting in improved tailoring and acceptability towards historically underserved individuals.
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DOI：
10.1177/1043659610387149
发表时间：
2011-01
期刊：
Journal of transcultural nursing : official journal of the Transcultural Nursing Society
影响因子：
--
作者：
Lori JR;Yi CH;Martyn KK
通讯作者：
Martyn KK
影响因子：
9.9
作者：
Ainiala, H;Loukkola, J;Hietaharju, A
通讯作者：
Hietaharju, A
影响因子：
--
作者：
Bachen, Elizabeth A.;Chesney, Margaret A.;Criswell, Lindsey A.
通讯作者：
Criswell, Lindsey A.
影响因子：
4.7
作者：
Horton, R;Peterson, MGE;Paget, SA
通讯作者：
Paget, SA
影响因子：
3.9
作者：
Heisler, M;Piette, JD
通讯作者：
Piette, JD