Using community-based geographical information system (GIS) to recruit older Asian Americans in an Alzheimer's disease study.
Using community-based geographical information system (GIS) to recruit older Asian Americans in an Alzheimer's disease study.
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DOI：
10.1136/bmjopen-2023-072761
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发表时间：
2023-08-03
期刊：
影响因子：
2.9
通讯作者：
Choi, Yun-Beom
中科院分区：
文献类型：
--
作者：
Lee, Haeok;Ha, Hoehun;Yim, Sejung;Yang, Hyun-Sik;Lee, Veronica;Hong, Eunju;Chow, Tiffany W.;Park, Van Ta;Wang, Li-San;Jun, Gyungah;Choi, Yun-Beom
这项研究的目的是展示结合基于社区的地理信息系统(GIS)在招募亚洲阿尔茨海默病队列(ACAD)研究参与者使用韩裔美国人(KA)老年人亚群方面的有用性。ACAD研究是美国和加拿大的第一项大型研究，重点是招募中国、韩国和越南的老年人，以解决亚裔美国人在临床研究中代表性不足的问题。为了促进患有和不患有痴呆症的种族/少数民族老年人参与临床研究，我们通过与社区成员合作，利用地理信息系统来划定教会和长者网络的地理集群和飞地的边界，并为种族诊所服务。此外，我们使用了被确定为KA老年人特有的招聘因素的社会经济数据，并对其进行了分析，以制定招聘战略。地理信息系统地图显示了以信仰为基础的组织和为当地诊所提供服务的KA的社会人口特征和资源的异质性。我们解决了这些不成比例地影响临床研究参与的因素，并在拟议的时间段内成功招募了预期的参与者(N=60)。使用地理信息系统地图定位KA为一项试点研究提供了成功的研究推广努力的创新途径，该研究可能在未来扩展到美国其他未得到充分服务的人群。我们将在随后的大规模临床遗传流行病学研究中使用这一工具。这一做法响应了国家老龄问题研究所的呼吁，即制定战略，改善不同人口中老年人的健康状况。我们的研究将为卫生研究人员和政策制定者提供实用指导，以确定临床研究或倡议中未得到充分研究和难以触及的特定亚裔美国人群体。这将进一步有助于缩小老年少数群体之间的健康和研究差距。
This study aims to show the usefulness of incorporating a community-based geographical information system (GIS) in recruiting research participants for the Asian Cohort for Alzheimer’s Disease (ACAD) study for using the subgroup of Korean American (KA) older adults. The ACAD study is the first large study in the USA and Canada focusing on the recruitment of Chinese, Korean and Vietnamese older adults to address the issues of under-representation of Asian Americans in clinical research. To promote clinical research participation of racial/ethnic minority older adults with and without dementia, we used GIS by collaborating with community members to delineate boundaries for geographical clusters and enclaves of church and senior networks, and KA serving ethnic clinics. In addition, we used socioeconomic data identified as recruitment factors unique to KA older adults which was analysed for developing recruitment strategies. GIS maps show a visualisation of the heterogeneity of the sociodemographic characteristics and the resources of faith-based organisations and KA serving local clinics. We addressed these factors that disproportionately affect participation in clinical research and successfully recruited the intended participants (N=60) in the proposed period. Using GIS maps to locate KA provided innovative inroads to successful research outreach efforts for a pilot study that may be expanded to other underserved populations across the USA in the future. We will use this tool subsequently on a large-scale clinical genetic epidemiology study. This approach responds to the call from the National Institute on Aging to develop strategies to improve the health status of older adults in diverse populations. Our study will offer a practical guidance to health researchers and policymakers in identifying understudied and hard-to-reach specific Asian American populations for clinical studies or initiatives. This would further contribute in reducing the health and research disparity gaps among older minority populations.
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作者：
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通讯作者：
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