Influences of health and environmental deprivation on family relationships among children with chronic disease.
Influences of health and environmental deprivation on family relationships among children with chronic disease.
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DOI：
10.1007/s11136-020-02737-6
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发表时间：
2021-05
期刊：
影响因子：
--
通讯作者：
Flynn KE
中科院分区：
文献类型：
--
作者：
Cox ED;Palta M;Lasarev M;Binder AT;Connolly JR;Flynn KE
家庭在管理慢性病方面发挥着关键作用。在患有慢性病的儿童中，我们描述了患者报告结果测量信息系统（PROMIS）家庭关系随时间的测量及其与社会人口统计、环境剥夺和健康的关系。在儿科诊所和急诊科 (ED) 招募的 8-18 岁患有哮喘 (n=171)、1 型糖尿病 (n=199) 或镰状细胞病 (n=135) 儿童的家长完成了人口调查。在长达三年的时间里，孩子们每六个月完成一次 PROMIS 家庭关系、焦虑和抑郁症状简表（T 分数；平均值 50，SD=10）和 5 级健康状况项目。线性混合模型适合估计关联性。基线年龄较大与家庭关系较弱有关。例如，基线年龄每提高 3 岁，急诊室招募的哮喘男性（-3.0；95%CI -5.7 至 -.0.2）和女性（-3.1；95%CI -6.0 至 -0.3）之间的关系就会弱 3 个百分点。平均整体健康状况每高 1 个单位，糖尿病儿童的相关性就强 4.6 分 (95% CI 3.2-6.1)，而哮喘儿童 (2.3; 0.7-3.9) 和镰状细胞病 (2.1; 0.3-3.9) 的相关性则强约 2 分。所有三种疾病的平均焦虑或抑郁症状每增加 1 个单位，家庭关系就会减弱 0.3-0.5 分。关系与环境剥夺没有显着相关，并且随着时间的推移通常保持稳定。年龄较大的儿童的家庭关系较弱，并且随着时间的推移总体稳定，但会随着身心健康状况而波动。监测 PROMIS 家庭关系分数可能有助于转诊需要支持的慢性病儿童。
Families play a key role in managing chronic illness. Among chronically ill children, we describe the Patient-Reported Outcomes Measurement Information System (PROMIS) Family Relationships measure over time and its associations with sociodemographics, environmental deprivation, and health. Parents of children aged 8-18 years with asthma (n=171), type 1 diabetes (n=199), or sickle cell disease (n=135), recruited in pediatric clinics and emergency departments (ED), completed demographic surveys. Every six months for up to three years, children completed PROMIS Family Relationships, Anxiety, and Depressive Symptoms short forms (T-scores; mean 50, SD=10), and a 5-level health status item. Linear mixed models were fit to estimate associations. Older baseline age was associated with weaker family relationships. For example, for each 3-year higher baseline age, relationships were 3-points weaker for males (−3.0; 95%CI −5.7 to −.0.2) and females (−3.1; 95%CI −6.0 to −0.3) with asthma recruited in the ED. For each 1-unit higher mean overall health, relationships were 4.6 points (95%CI 3.2-6.1) stronger for children with diabetes and about 2 points stronger for children with asthma (2.3; 0.7-3.9) and sickle cell disease (2.1; 0.3-3.9). Family relationships were 0.3-0.5 points weaker for each 1-unit increment in mean anxiety or depressive symptoms across all three diseases. Relationships were not significantly associated with environmental deprivation and generally stable over time. Family relationships were weaker among older children and generally stable over time, yet fluctuated with physical and mental health. Monitoring PROMIS Family Relationships scores may facilitate referrals for chronically ill children who need support.
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影响因子：
39.2
作者：
Kind AJ;Jencks S;Brock J;Yu M;Bartels C;Ehlenbach W;Greenberg C;Smith M
通讯作者：
Smith M
DOI：
10.1007/s11136-015-0953-3
发表时间：
2015-09
期刊：
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
影响因子：
--
作者：
DeWalt DA;Gross HE;Gipson DS;Selewski DT;DeWitt EM;Dampier CD;Hinds PS;Huang IC;Thissen D;Varni JW
通讯作者：
Varni JW
影响因子：
12.7
作者：
Singh, GK
通讯作者：
Singh, GK
影响因子：
3.6
作者：
Logan, DE;Radcliffe, J;Smith-Whitley, K
通讯作者：
Smith-Whitley, K
影响因子：
3.6
作者：
LAGRECA, AM;AUSLANDER, WF;SANTIAGO, JV
通讯作者：
SANTIAGO, JV