Identifying common health indicators from paediatric core outcome sets: a systematic review with narrative synthesis using the WHO International Classification of Functioning, Health and Disability.
Identifying common health indicators from paediatric core outcome sets: a systematic review with narrative synthesis using the WHO International Classification of Functioning, Health and Disability.
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DOI：
10.1136/bmjpo-2022-001537
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发表时间：
2022-10
影响因子：
2.6
通讯作者：
中科院分区：
文献类型：
--
作者：
儿童健康指标有可能为社会对话、决策和优先事项提供信息。儿科核心结局集是确定临床组内试验最小结局集的一种越来越常见的方法。探索现有数据集的共性可能有助于深入了解普遍重要和包容性的儿童健康指标。对2008年至2022年有效性试验登记册中的核心结局指标进行了检索。符合条件的文章是报告核心成果集的文章，重点是0-18岁儿童和青年。使用国际功能、残疾和健康分类（ICF）作为对提取结果进行分类的框架。还提取了关于儿童、青年及其家庭参与成套设备开发的信息。共识别出206篇文章，其中36篇被纳入。提取了441个独特的结果，映射到多个集合中存在的22个结果聚类。医疗诊断结果是最大的集群，其次是疼痛，沟通和社会互动，流动性，自我护理和学校。儿童和青少年的观点在核心成果集中的代表性不足，只有36%的审查研究包括他们在任何发展阶段。现有的儿科核心成果集在关键成果方面存在重叠，这表明通用儿童健康计量框架具有潜力。目前尚不清楚现有的成套指标是否最能反映对儿童和青年人重要的健康层面，有必要让儿童和青年人更好地参与健康指标的制定，以解决这一问题。
Indicators of child health have the potential to inform societal conversations, decision-making and prioritisation. Paediatric core outcome sets are an increasingly common way of identifying a minimum set of outcomes for trials within clinical groups. Exploring commonality across existing sets may give insight into universally important and inclusive child health indicators. A search of the Core Outcome Measures in Effectiveness Trial register from 2008 to 2022 was carried out. Eligible articles were those reporting on core outcome sets focused on children and young people aged 0–18 years old. The International Classification of Functioning, Disability and Health (ICF) was used as a framework to categorise extracted outcomes. Information about the involvement of children, young people and their families in the development of sets was also extracted. 206 articles were identified, of which 36 were included. 441 unique outcomes were extracted, mapping to 22 outcome clusters present across multiple sets. Medical diagnostic outcomes were the biggest cluster, followed by pain, communication and social interaction, mobility, self-care and school. Children and young people’s views were under-represented across core outcome sets, with only 36% of reviewed studies including them at any stage of development. Existing paediatric core outcome sets show overlap in key outcomes, suggesting the potential for generic child health measurement frameworks. It is unclear whether existing sets best reflect health dimensions important to children and young people, and there is a need for better child and young person involvement in health indicator development to address this.
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影响因子：
3.7
作者：
Gargon E;Gorst SL;Matvienko-Sikar K;Williamson PR
通讯作者：
Williamson PR
影响因子：
5.2
作者：
Karas, Jacek;Ashkenazi, Shai;Szajewska, Hania
通讯作者：
Szajewska, Hania
DOI：
10.1016/j.ijporl.2020.110029
发表时间：
2020-07-01
影响因子：
1.5
作者：
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通讯作者：
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影响因子：
4.6
作者：
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通讯作者：
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影响因子：
1.1
作者：
Allori, Alexander C.;Kelley, Thomas;Wong, Karen W.
通讯作者：
Wong, Karen W.