Quality-of-life issues and symptoms reported by patients living with haematological malignancy: a qualitative study.
Quality-of-life issues and symptoms reported by patients living with haematological malignancy: a qualitative study.
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DOI：
10.1177/2040620720955002
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发表时间：
2020
影响因子：
3.4
通讯作者：
Salek S
中科院分区：
文献类型：
--
作者：
Goswami P;Oliva EN;Ionova T;Else R;Kell J;Fielding AK;Jennings DM;Karakantza M;Al-Ismail S;Collins GP;McConnell S;Langton C;Salek S
我们的目的是确定与健康相关的生活质量（HRQoL）的问题和症状的血液恶性肿瘤（HM）患者，并制定一个概念框架，以反映它们之间的相互关系。在英国的一项多中心定性研究中，共采访了129例HM患者。所有访谈都用NVivo-11进行了录音、转录和分析。总体而言，患者报告了34个问题，并分为两部分：生活质量（QoL）和症状。最常见的HRQoL问题是：饮食习惯;社交生活;体力活动;睡眠;和心理健康。此外，最普遍的疾病相关症状是：疲劳;感觉不适;呼吸困难;缺乏活力;背痛。最常见的治疗副作用是：疲劳;感觉恶心;味觉障碍;和呼吸困难。HM及其治疗对患者的HRQoL有显著影响，特别是在工作角色变化、身体形象和对财务的影响等问题上。
Our aim was to identify health-related quality-of-life (HRQoL) issues and symptoms in patients with haematological malignancies (HMs) and develop a conceptual framework to reflect the inter-relation between them. A total of 129 patients with HMs were interviewed in a UK multicentre qualitative study. All interviews were audio recorded, transcribed and analysed using NVivo-11. Overall, 34 issues were reported by patients and were grouped into two parts: quality of life (QoL) and symptoms. The most prevalent HRQoL issues were: eating and drinking habits; social life; physical activity; sleep; and psychological well-being. Furthermore, most prevalent disease-related symptoms were: tiredness; feeling unwell; breathlessness; lack of energy; and back pain. The most prevalent treatment side effects were: tiredness; feeling sick; disturbance in sense of taste; and breathlessness. Both HMs and their treatments have a significant impact on patients’ HRQoL, in particular on issues such as job-role change, body image and impact on finances.
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影响因子：
3.2
作者：
Hsieh, HF;Shannon, SE
通讯作者：
Shannon, SE
影响因子：
3.1
作者：
Johnsen, Anna T.;Tholstrup, Dorte;Groenvold, Mogens
通讯作者：
Groenvold, Mogens
影响因子：
6.2
作者：
Ell, Kathleen;Xie, Bin;Vourlekis, Betsy
通讯作者：
Vourlekis, Betsy
影响因子：
--
作者：
Higginson, IJ;Carr, AJ
通讯作者：
Carr, AJ
影响因子：
6.2
作者：
Mols, Floortje;Aaronson, Neil K.;van de Poll-Franse, Lonneke V.
通讯作者：
van de Poll-Franse, Lonneke V.