Impact of the COVID-19 Italian Lockdown on the Physiological and Psychological Well-Being of Children with Fragile X Syndrome and Their Families.
Impact of the COVID-19 Italian Lockdown on the Physiological and Psychological Well-Being of Children with Fragile X Syndrome and Their Families.
复制标题
DOI：
10.3390/ijerph18115752
复制
发表时间：
2021-05-27
影响因子：
--
通讯作者：
Murgia A
中科院分区：
文献类型：
--
作者：
Di Giorgio E;Polli R;Lunghi M;Murgia A
2020年3月10日，意大利实施了全面封锁，以尽可能限制COVID-19感染的病毒传播。关于COVID-19大流行心理影响的研究强调了对儿童及其父母的不利影响。然而，对患有神经发育障碍的儿童及其照顾者的影响知之甚少。本研究调查了封锁如何影响2至16岁的脆性x综合征（FXS）儿童及其母亲的生理和心理健康。在一项在线调查中，48名FXS孩子的母亲报告了她们作为照顾者的自我效能感，同时报告了她们孩子在封锁期间和封锁前的睡眠习惯、行为和情绪困难。结果显示，睡眠质量普遍恶化，行为问题增多。虽然母亲们报告的外部支持减少了，但与之前相比，她们作为照顾者的自我效能感在家中坐月子期间没有改变。总的来说，目前的研究表明，需要采取具体的干预措施来管理睡眠问题，以及为提高儿童和母亲的心理健康提供具体的治疗和社会支持，以减轻封锁的长期影响。
On 10 March 2020, in Italy, a total lockdown was put in place to limit viral transmission of COVID-19 infection as much as possible. Research on the psychological impact of the COVID-19 pandemic highlighted detrimental effects in children and their parents. However, little is known about such effects in children with neurodevelopment disorders and their caregivers. The present study investigated how the lockdown has impacted the physiological and psychological well-being of children with Fragile X-Syndrome (FXS), aged from 2 to 16 years, and their mothers. In an online survey, 48 mothers of FXS children reported their perception of self-efficacy as caregivers and, at the same time, their children’s sleep habits, behavioral and emotional difficulties during, and retrospectively, before the lockdown. Results showed a general worsening of sleep quality, and increasing behavioral problems. Although mothers reported a reduction in external support, their perception of self-efficacy as caregivers did not change during the home confinement compared to the period before. Overall, the present study suggested that specific interventions to manage sleep problems, as well as specific therapeutic and social support for increasing children and mother psychological well-being, need to be in place to mitigate the long-term effects of a lockdown.
登录
查看更多内容
影响因子：
3.1
作者：
Bentenuto, Arianna;Mazzoni, Noemi;Giannotti, Michele;Venuti, Paola;de Falco, Simona
通讯作者：
de Falco, Simona
DOI：
10.1186/s12966-017-0555-2
发表时间：
2017-07-26
期刊：
The international journal of behavioral nutrition and physical activity
影响因子：
--
作者：
Brazendale K;Beets MW;Weaver RG;Pate RR;Turner-McGrievy GM;Kaczynski AT;Chandler JL;Bohnert A;von Hippel PT
通讯作者：
von Hippel PT
影响因子：
2.7
作者：
Wanamaker, CE;Glenwick, DS
通讯作者：
Glenwick, DS
DOI：
10.1097/00004703-200604002-00012
发表时间：
2006-04-01
影响因子：
2.4
作者：
Farzin, Faraz;Perry, Hazel;Hagerman, Randi
通讯作者：
Hagerman, Randi
影响因子：
25
作者：
Belmonte, Matthew K.;Bourgeron, Thomas
通讯作者：
Bourgeron, Thomas