Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic
Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic
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支持需求和获得支持的障碍：对 COVID-19 大流行期间失去亲人的人进行的混合方法全国调查的基线结果
DOI：
10.1101/2021.06.11.21258575
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发表时间：
2021
期刊：
影响因子：
--
通讯作者：
Harrop E
中科院分区：
文献类型：
--
作者：
Harrop E
背景COVID-19大流行是一场大规模的丧亲事件，深刻地破坏了悲伤体验。了解此时丧亲者的支持需求和获得支持的途径对于确保适当的丧亲支持基础设施至关重要。目的调查流行病期间丧亲者的悲伤经历、支持需求以及正式和非正式丧亲支持的使用情况。设计纵向调查的基线结果。支持需求和访问支持的经验报告使用描述性统计和专题分析的自由文本data.Setting/participants 711成年人丧失在英国3月至2020年12月之间，通过媒体，社交媒体，国家协会和社区/慈善组织招募。大多数参与者没有寻求丧亲服务（59%，n = 422）或他们的全科医生（60%，n = 428）的支持。在寻求此类支持的参与者中，超过一半的人在获得丧亲服务（56%，n = 149）/全科医生支持（52%，n = 135）方面遇到困难。大约51%的人报告在悲伤中高度/严重脆弱;其中，74%的人没有获得丧亲或心理健康服务。这些障碍包括服务有限、缺乏适当的支持、不愿意寻求帮助以及不知道如何获得服务。约39%（n= 279）的人在获得家人/朋友的支持方面遇到困难，包括关系挑战、很少面对面接触和集体哀悼中断。大流行的丧亲之痛和更广泛的社会压力的感知独特性加剧了他们的isolation.ConclusionsPeople在大流行期间失去亲人的人有高水平的支持需求，同时难以获得支持。我们建议增加提供和定制丧亲服务，改进关于支持选择和社会/教育举措的信息，以加强非正式支持和改善孤立。
BackgroundThe COVID-19 pandemic is a mass bereavement event which has profoundly disrupted grief experiences. Understanding support needs and access to support among people bereaved at this time is crucial to ensuring appropriate bereavement support infrastructure.AimTo investigate grief experiences, support needs and use of formal and informal bereavement support among people bereaved during the pandemic.DesignBaseline results from a longitudinal survey. Support needs and experiences of accessing support are reported using descriptive statistics and thematic analysis of free-text data.Setting/participants711 adults bereaved in the UK between March and December 2020, recruited via media, social media, national associations and community/charitable organisations.ResultsHigh-level needs for emotional support were identified. Most participants had not sought support from bereavement services (59%,n= 422) or their General-Practitioner (60%,n= 428). Of participants who had sought such support, over half experienced difficulties accessing bereavement services (56%,n= 149)/General-Practitioner support (52%,n= 135). About 51% reported high/severe vulnerability in grief; among these, 74% were not accessing bereavement or mental-health services. Barriers included limited availability, lack of appropriate support, discomfort asking for help and not knowing how to access services. About 39% (n= 279) experienced difficulties getting support from family/friends, including relational challenges, little face-to-face contact and disrupted collective mourning. The perceived uniqueness of pandemic bereavement and wider societal strains exacerbated their isolation.ConclusionsPeople bereaved during the pandemic have high levels of support needs alongside difficulties accessing support. We recommend increased provision and tailoring of bereavement services, improved information on support options and social/educational initiatives to bolster informal support and ameliorate isolation.
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