Pediatric Psychosocial Standards of Care in action: Research that bridges the gap from need to implementation.

Pediatric Psychosocial Standards of Care in action: Research that bridges the gap from need to implementation.
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DOI:
10.1002/pon.5505
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发表时间:
2020-12
期刊:
影响因子:
3.6
通讯作者:
Thompson AL
Thompson AL
中科院分区:
医学2区
文献类型:
--
作者:
Wiener L;Canter K;Long K;Psihogios AM;Thompson AL

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描述符合已发布的癌症儿童及其家庭心理社会照护标准的创新心理社会照护模式,努力弥合研究与实践之间的差距。 玛蒂奇迹癌症基金会与美国心理社会肿瘤学会合作,审查了22份意向书和13份完整的资助申请,并向那些旨在实施已发布的15项照护标准中的任何一项的高质量项目的研究人员提供了小额资助。对于三项评分最高的获资助研究项目,我们描述了所实施的标准、新颖的研究设计和实施策略,以及研究结果如何为制定、实施和传播有效解决方案以弥合标准与实践之间的差距提供信息。 介绍的第一项研究是一种针对癌症儿童家长的创新电子健康干预措施,旨在改善家庭功能,减轻急性痛苦、焦虑和创伤后应激症状。第二项研究探讨了对白血病青少年和年轻成人进行口服化疗依从性的每日短信评估的可接受性和可行性,第三项研究为向兄弟姐妹提供心理社会服务制定了蓝图,包括克服常见实施障碍的方法。 这些研究呈现出几个主题,包括(1)关注先前实施尝试的障碍;(2)技术在提供照护中的作用;(3)利益相关者参与的必要性;(4)考虑针对照护环境异质性的多管齐下的解决方案。还讨论了将心理社会照护标准纳入临床实践的后续步骤。
To describe innovative models of psychosocial care delivery that align with published Standards of Psychosocial Care of Children with Cancer and their Families, in efforts to bridge the divide between research and practice. The Mattie Miracle Cancer Foundation, in partnership with the American Psychosocial Oncology Society reviewed 22 letters of intent and 13 full grants and awarded small grants to researchers with high quality projects that aimed to implement any of the published 15 Standards of Care. For three of the highest rated funded research projects, we describe the Standard implemented, the novel research design and implementation strategies, and how the research findings might inform the development, implementation, and dissemination of effective solutions for bridging Standard-to-practice gaps. The first study presented is an innovative eHealth intervention for parents of children with cancer designed to improve family functioning and decrease symptoms of acute distress, anxiety, and posttraumatic stress. The second study addresses the acceptability and feasibility of using daily text message assessments of oral chemotherapy adherence in adolescents and young adults with leukemia, and the third creates a blueprint for providing psychosocial services to siblings, including ways to overcome common implementation barriers. Several themes emerged from the studies presented, including (1) attention to barriers to previous attempts at implementation; (2) technology’s role in delivering care; (3) the need for stakeholder involvement; and (4) consideration for multi-pronged solutions that address heterogeneity in care settings. Next steps for integrating the Standards of Psychosocial Care into clinical practice are discussed.
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