People powered research: what do communities identify as important for happy and healthy children and young people? A multi-disciplinary community research priority setting exercise in the City of Bradford, United Kingdom (UK).

People powered research: what do communities identify as important for happy and healthy children and young people? A multi-disciplinary community research priority setting exercise in the City of Bradford, United Kingdom (UK).
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DOI:
10.1186/s12939-023-01881-y
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发表时间:
2023-04-25
影响因子:
4.8
通讯作者:
McEachan, Rosemary
McEachan, Rosemary
中科院分区:
医学2区
文献类型:
--
作者:
Cartwright, Christopher;Rahman, Aamnah;Islam, Shahid;Lockyer, Bridget;Roper, Euroline;Worcester, Meegan;Zarate, Melany;McEachan, Rosemary

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让社区参与研究重点的设定可以提高研究的相关性和效率,从而带来更好的健康成果。然而,这些实践在社区如何参与方面往往缺乏明确性,而且重点被落实的程度也不清楚。例如,少数族裔等很少被关注的群体可能在参与过程中遇到障碍。我们报告了在英国布拉德福德这个多元文化且贫困的城市进行的一次包容性的共同制定社区研究重点设定实践的方法和结果。该实践的目的是确定让儿童快乐健康的重点事项,由“出生在布拉德福德”(BiB)研究项目开展,以便为未来的研究议程提供信息。 一个由12名成员组成的多学科、多族裔社区指导小组在2018年12月至2020年3月期间采用改良的詹姆斯·林德联盟方法主导了这一过程。研究重点通过广泛分发的纸质问卷和在线调查收集。受访者被要求列出三件对保持儿童(i)快乐、(ii)健康重要的事情,以及为改善健康或快乐需要改变什么。社区研究人员对自由文本数据进行迭代编码,并在与社区指导小组和社区成员举行的一系列研讨会和会议上共同确定了共同的重点。 588名调查受访者确定了5748个重点,这些重点被编码为22个主题。它们涵盖了一系列个人、社会以及更广泛的社会经济、环境和文化方面的重点。饮食/营养和运动最常被认为对健康重要,包括为改善健康需要改变什么。对于快乐而言,家庭生活和家庭关系、倾听孩子的心声以及教育/活动是最常被提及的。社区资产被认为对健康和快乐都很重要。根据调查结果,指导小组提出了27个研究问题。这些问题被映射到BiB内部现有的和计划中的研究议程上。 社区将结构性和个体因素都确定为健康和快乐的重要重点。我们展示了如何通过共同生产的方法让社区参与重点设定,希望这可以作为其他人的一个范例。由此产生的共同研究议程将影响未来的研究,以改善布拉德福德家庭的健康状况。 网络版包含补充材料,可在10.1186/s12939 - 023 - 01881 - y获取。
Involving communities in research priority setting can increase the relevance and efficiency of research, leading to better health outcomes. However these exercises often lack clarity in how communities are involved and the extent to which priorities are acted upon is unclear. Seldom-heard groups, for example ethnic minorities may experience barriers to participation. We report methods and outcomes of an inclusive co-produced community research priority setting exercise within the multicultural and deprived city of Bradford, UK. The aim was to identify priorities for keeping children happy and healthy and was undertaken by the Born in Bradford (BiB) research programme to inform future research agendas. A 12 member multi-disciplinary, multi-ethnic community steering group led the process using a modified James Lind Alliance approach between December 2018-March 2020. Research priorities were collected through a widely distributed paper and online survey. Respondents were asked to list three important things to keep children i) happy, ii) healthy and what needs to change to improve either health or happiness. Free text data were coded iteratively by community researchers, and shared priorities were co-produced in a series of workshops and meetings with the community steering group and community members. Five hundred eighty-eight respondents to the survey identified 5748 priorities, which were coded into 22 themes. These covered a range of individual, social and wider socioeconomic, environmental and cultural priorities. Diet/nutrition and exercise were most commonly identified as important for health, including what needs to change to improve health. For happiness, home life and family relationships, listening to children, and education/activities were the most commonly identified. Community assets were identified as important to change for both health and happiness. From the survey response the steering group developed 27 research questions. There were mapped onto existing and planned research agendas within BiB. Communities identified both structural and individual factors as important priorities for health and happiness. We demonstrate how communities can be involved in priority setting using a co-productive approach in the hope this can be used as a model for others. The resulting shared research agenda will shape future research to improve the health of families living in Bradford. The online version contains supplementary material available at 10.1186/s12939-023-01881-y.
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