Privacy Attitudes among Early Adopters of Emerging Health Technologies.
Privacy Attitudes among Early Adopters of Emerging Health Technologies.
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DOI：
10.1371/journal.pone.0166389
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发表时间：
2016
期刊：
影响因子：
3.7
通讯作者：
Bloss CS
中科院分区：
文献类型：
--
作者：
Cheung C;Bietz MJ;Patrick K;Bloss CS
基因组测序和可穿戴传感器等卫生技术的进步，现在可以从个人收集高度细化的个人健康数据。目前还不清楚在这些新兴的医疗技术背景下，人们是如何看待隐私的。一个有待解决的问题是，这些进步的早期采用者对隐私的概念是否与非早期采用者不同。本研究旨在了解新兴卫生技术早期采用者的隐私态度。我们对基因组测序、健康设备和应用的早期采用者进行了深入、半结构化的访谈，重点分析了参与者对隐私的态度和看法。采用归纳内容分析法提取主题。尽管受访者愿意分享个人数据以支持科学进步，但他们仍然表达了担忧，并不确定谁可以访问他们的数据，以及出于什么目的。简而言之，他们并没有忽视隐私风险。与私隐有关的主要调查结果分为以下四个主题：第一，个人资料私隐；二是对个人信息的控制；第三，对歧视的担忧；第四，为科学贡献个人数据。新兴卫生技术的早期采用者对隐私的概念似乎比基于他们采用个人卫生技术和参与开放科学而可能预期的更为复杂和微妙。早期采用者还对他们决定使用新技术和共享数据用于研究的隐私影响表示不确定。虽然不能代表一般公众，但对早期采用者的研究可以提供重要的见解，了解在新兴卫生技术和个人健康数据研究的背景下，人们对隐私的态度正在发生变化。
Advances in health technology such as genome sequencing and wearable sensors now allow for the collection of highly granular personal health data from individuals. It is unclear how people think about privacy in the context of these emerging health technologies. An open question is whether early adopters of these advances conceptualize privacy in different ways than non-early adopters. This study sought to understand privacy attitudes of early adopters of emerging health technologies. Transcripts from in-depth, semi-structured interviews with early adopters of genome sequencing and health devices and apps were analyzed with a focus on participant attitudes and perceptions of privacy. Themes were extracted using inductive content analysis. Although interviewees were willing to share personal data to support scientific advancements, they still expressed concerns, as well as uncertainty about who has access to their data, and for what purpose. In short, they were not dismissive of privacy risks. Key privacy-related findings are organized into four themes as follows: first, personal data privacy; second, control over personal information; third, concerns about discrimination; and fourth, contributing personal data to science. Early adopters of emerging health technologies appear to have more complex and nuanced conceptions of privacy than might be expected based on their adoption of personal health technologies and participation in open science. Early adopters also voiced uncertainty about the privacy implications of their decisions to use new technologies and share their data for research. Though not representative of the general public, studies of early adopters can provide important insights into evolving attitudes toward privacy in the context of emerging health technologies and personal health data research.
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影响因子：
56.9
作者：
Gymrek, Melissa;McGuire, Amy L.;Erlich, Yaniv
通讯作者：
Erlich, Yaniv
影响因子：
4.4
作者：
Meyer, G
通讯作者：
Meyer, G
DOI：
10.1590/s0104-12902010000400002
发表时间：
2010-12-01
期刊：
Saúde e Sociedade
影响因子：
--
作者：
Slovic, Paul
通讯作者：
Slovic, Paul
影响因子：
2.5
作者：
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通讯作者：
Solove, DJ
影响因子：
12.3
作者：
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通讯作者：
Church GM