Mid-life social outcomes for a population-based sample of adults with ASD.

Mid-life social outcomes for a population-based sample of adults with ASD.
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DOI:
10.1002/aur.1897
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发表时间:
2018-01
期刊:
Autism research : official journal of the International Society for Autism Research
影响因子:
--
通讯作者:
McMahon W
McMahon W
中科院分区:
其他
文献类型:
--
作者:
Farley M;Cottle KJ;Bilder D;Viskochil J;Coon H;McMahon W

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正如当前已发表的研究所述,患有自闭症谱系障碍(ASD)的成年人在中年时的社交成果不如无ASD的同龄人。本研究的目的是通过检查基于人群的ASD成年人样本(平均年龄 = 35.5岁,范围 = 22.2 - 51.4)当前生活状况的细节,来扩展对社交功能、就业、独立生活和社会服务使用的了解。我们通过直接评估和知情人报告为169人收集了结果数据。四分之三的样本认知能力处于智力残疾范围。社交功能结果作为一项单一指标,与之前其他样本(包括智力能力处于正常范围的个体比例较高的样本)所报告的结果相似,其中20%的人取得了最独立的成果,46%的人在大多数生活领域都需要高水平的支持。取得最佳成果的参与者亚组在几个结果指标上代表了一系列社交和智力能力。参与者使用了大量的公共和私人支持,但也明确了一些明显未得到满足的需求领域。
Adults with ASD fall short of social outcomes of non-ASD peers in mid-life, as documented by currently published research. The aim of the current study was to extend what is known about social functioning, employment, independent living, and use of social services by examining details of the current life status for a population-based sample of adults with ASD (mean age = 35.5 years, range = 22.2 – 51.4). We collected outcome data via direct assessment and informant report for 169 individuals. Three-fourths of the sample had cognitive abilities in the intellectually-disabled range. Social functioning outcomes, as a single measure, mirror those reported previously for other samples, including samples with a high proportion of individuals with normal range intellectual abilities, with 20% achieving the most independent outcomes and 46% requiring high levels of support across most life areas. Participant subgroups who achieved maximal outcomes represented a range of social and intellectual abilities for several outcome metrics. Participants used high levels of public and private supports, yet specific areas of clear, unmet need were also identified.
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