Collaboration strategies in nontraditional community-based participatory research partnerships: lessons from an academic−community partnership with autistic self-advocates.
Collaboration strategies in nontraditional community-based participatory research partnerships: lessons from an academic−community partnership with autistic self-advocates.
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DOI：
10.1353/cpr.2011.0022
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发表时间：
2011
期刊：
影响因子：
--
通讯作者：
Baggs A
中科院分区：
文献类型：
--
作者：
Nicolaidis C;Raymaker D;McDonald K;Dern S;Ashkenazy E;Boisclair C;Robertson S;Baggs A
大多数基于社区的参与性研究（CBPR）项目涉及由种族，民族，地理或职业定义的当地社区。自闭症自我倡导者，一个由残疾定义的地理上分散的社区，在研究中遇到的问题类似于更传统的少数民族所表达的问题。我们寻求建立一个学术社区的合作伙伴关系，使用CBPR来改善自闭症患者的生活。学术自闭症谱系研究和教育伙伴关系（AASPIRE）包括来自学术，自我倡导，家庭和专业社区的代表。我们目前正在进行几项关于自闭症成年人的医疗保健经验和幸福感的研究。我们已经了解了许多整合技术和流程的策略，以成功地平衡权力并适应不同的通信和协作需求。CBPR可以成功地与自闭症自我倡导者进行。我们的策略可能对其他CBPR伙伴关系有用，特别是那些无法亲自见面或包括具有不同沟通需求的人的伙伴关系。
Most community-based participatory research (CBPR) projects involve local communities defined by race, ethnicity, geography, or occupation. Autistic self-advocates, a geographically dispersed community defined by disability, experience issues in research similar to those expressed by more traditional minorities. We sought to build an academic–community partnership that uses CBPR to improve the lives of people on the autistic spectrum. The Academic Autistic Spectrum Partnership in Research and Education (AASPIRE) includes representatives from academic, self-advocate, family, and professional communities. We are currently conducting several studies about the health care experiences and well-being of autistic adults. We have learned a number of strategies that integrate technology and process to successfully equalize power and accommodate diverse communication and collaboration needs. CBPR can be conducted successfully with autistic self-advocates. Our strategies may be useful to other CBPR partnerships, especially ones that cannot meet in person or that include people with diverse communication needs.
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