Caring for a Relative With Dementia in Long-Term Care During COVID-19.
Caring for a Relative With Dementia in Long-Term Care During COVID-19.
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DOI:
10.1016/j.jamda.2021.11.026
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发表时间:
2022-03
影响因子:
7.6
通讯作者:
Gaugler JE
中科院分区:
文献类型:
--
作者:
Mitchell LL;Albers EA;Birkeland RW;Peterson CM;Stabler H;Horn B;Cha J;Drake A;Gaugler JE
The COVID-19 pandemic created unique stressors for caregivers of persons with dementia living in long-term care (LTC) facilities. The purpose of this qualitative study was to identify the challenges associated with caring for a relative with dementia in LTC during the pandemic, as well as resources, strategies, and practices caregivers found helpful in coping with COVID-19. This study was conducted within the context of an ongoing randomized controlled trial of a psychosocial intervention to support caregivers. Open-ended survey responses (n = 125) and semistructured interviews with a subset of the sample (n = 20) collected between June 2020 and June 2021 explored caregivers' experiences during COVID-19. Participants included 125 family caregivers of persons with dementia living in residential LTC. Thematic analysis was used to identify themes capturing caregivers' experiences. In addition to concerns about COVID-19 infection, participants reported key challenges such as the difficulty of maintaining contact with relatives because of visiting restrictions, lack of information about relatives' health and well-being, worries about overburdened LTC staff, impossibility of returning relatives home from the LTC facility, and fears about relatives dying alone. Participants also identified resources, strategies, and practices that they perceived as helpful, including effective infection prevention within the LTC facility, good communication with LTC staff, and creative strategies for connecting with their relatives. This qualitative analysis informs recommendations for practice within LTC facilities, as well as supports that may help caregivers manage stressful situations in the context of COVID-19. Vaccination and testing protocols should be implemented to maximize family caregivers' opportunities for in-person contact with relatives in LTC, as alternative visiting modalities were often unsatisfactory or unfeasible. Informing caregivers regularly about individual residents' needs and status is crucial. Supports for bereaved caregivers should address complicated grief and feelings of loss.
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影响因子:
9.3
作者:
Gaugler JE;Mittelman MS;Hepburn K;Newcomer R
通讯作者:
Newcomer R
影响因子:
3
作者:
Cohen, Lauren W.;Zimmerman, Sheryl;Gwyther, Lisa P.
通讯作者:
Gwyther, Lisa P.
DOI:
10.15585/mmwr.mm7030e2
发表时间:
2021-07-27
期刊:
MMWR. Morbidity and mortality weekly report
影响因子:
--
作者:
Christie A;Brooks JT;Hicks LA;Sauber-Schatz EK;Yoder JS;Honein MA;CDC COVID-19 Response Team
通讯作者:
CDC COVID-19 Response Team
DOI:
10.1177/1533317520976720
发表时间:
2020-01-01
影响因子:
3.4
作者:
Borges-Machado, Flavia;Barros, Duarte;Carvalho, Joana
通讯作者:
Carvalho, Joana
影响因子:
4.2
作者:
Bramble, Marguerite;Moyle, Wendy;McAllister, Margaret
通讯作者:
McAllister, Margaret