Impact of Diagnostic Practices on the Self-Reported Health of Mothers of Recently Diagnosed Children with ASD.
Impact of Diagnostic Practices on the Self-Reported Health of Mothers of Recently Diagnosed Children with ASD.
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DOI：
10.3390/ijerph13090888
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发表时间：
2016-09-07
影响因子：
--
通讯作者：
Osborne LA
中科院分区：
文献类型：
--
作者：
Reed P;Picton L;Grainger N;Osborne LA
目的：获得儿童自闭症谱系障碍(ASD)的诊断是制定儿童治疗计划的关键，但也可能被父母视为高度压力。目前的研究采用横断面队列设计，研究了诊断过程的不同方面对接受自闭症诊断的儿童的母亲自报心理健康的影响。方法：158名确诊为自闭症儿童的母亲参加研究。在确诊后12个月内对儿童自闭症的严重程度和智力功能进行评估，母亲们完成了包括医院焦虑和抑郁量表、一般健康问卷和关于资源和压力的问卷在内的心理测评组合。结果：从第一次报告问题到获得诊断的实际时间，以及从第一次到最后一次预约的诊断过程的速度，都与专利压力负相关。相比之下，母亲对这一过程的速度和帮助的看法与焦虑和抑郁程度呈负相关。参与这一过程的专业人员的数量和所认为的诊断的连贯性也与母亲的功能方面负相关。结论：需要护理，以帮助母亲通过关于她们自身功能的诊断过程。在整个过程中提供信息和帮助来源，同时将涉及的专业人员数量保持在最低限度，可能会改善父母对这一过程的看法，并减少诊断对整个家庭的负面影响。
Objectives: Obtaining a diagnosis of an Autism Spectrum Disorder (ASD) for a child is a pivotal point in developing the treatment plan for the child but can also be regarded as highly stressful by parents. The current study examined the impact of different aspects of the diagnosis process on the self-reported mental health of mothers of children undergoing a diagnosis for ASD in a cross-sectional cohort design. Methods: One-hundred-fifty-eight mothers of consequently diagnosed children with ASD participated. The severity of the children’s ASD and their intellectual functioning was assessed within twelve months of the diagnosis, and the mothers completed a psychometric assessment battery including the Hospital Anxiety and Depression Scale, General Health Questionnaire, and Questionnaire on Resources and Stress. Results: The actual time from first reporting a problem to obtaining a diagnosis, and the speed of the diagnostic process from first to last appointment, were both negatively related to patenting stress. In contrast, mothers’ perceptions of the speed and helpfulness of the process were negatively related to levels of anxiety and depression. The number of professionals involved in the process and the perceived coherence of the diagnosis were also negatively related to aspects of mothers’ functioning. Conclusions: Care is needed to help mothers through the diagnostic process with regard to their own functioning. Providing information and help sources throughout the process, while keeping the number of professionals involved to a minimum, may improve the parent perception of the process and reduce the negative impacts of the diagnosis on the family as a whole.
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影响因子：
3.9
作者：
Gotham, Katherine;Pickles, Andrew;Lord, Catherine
通讯作者：
Lord, Catherine
影响因子：
1.9
作者：
Bartolo, PA
通讯作者：
Bartolo, PA
影响因子：
1.9
作者：
Minnes, P.;Steiner, K.
通讯作者：
Steiner, K.
DOI：
10.1111/j.1365-2788.2005.00699.x
发表时间：
2005-09-01
影响因子：
3.6
作者：
Eisenhower, AS;Baker, BL;Blacher, J
通讯作者：
Blacher, J
影响因子：
5.2
作者：
Brogan, CA;Knussen, C
通讯作者：
Knussen, C