Developing a community-engaged wheelchair exercise program for persons with MS: community advisory board formation and feedback.
Developing a community-engaged wheelchair exercise program for persons with MS: community advisory board formation and feedback.
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DOI：
10.1080/17483107.2021.2010819
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发表时间：
2023-11
影响因子：
2.2
通讯作者：
Motl, Robert W.
中科院分区：
文献类型：
--
作者：
Silveira, Stephanie L.;Froehlich-Grobe, Katherine;Motl, Robert W.
运动是一种安全、循证的方法，可以改善行动能力障碍、认知障碍和疲劳等症状；然而，使用轮椅进行行动的多发性硬化症(MS)患者被排除在大多数研究之外。本文描述了我们招募10名社区顾问委员会(CAB)成员并与他们合作，为轮椅使用者开发一种新颖的基于MS的家庭运动训练计划的方法。该运动训练计划基于初步的定性研究，包括渐进式运动处方、设备和基于社会认知理论的一对一行为指导。CAB成员使用虚拟会议软件，以五人为一组，在网上召开了五次会议。协调委员会的会议每次持续约1小时，笔记被转录成数字格式，用于数据分析。内容分析确定了与会议重点一致的元素(即处方、设备、指导和结果)。反馈被分成几个类别，以完善计划，特别是修改、添加或保留内容和/或活动。CAB成员的反馈非常积极，并强调了对所提供材料的潜在补充。研究小组建议根据驾驶室成员的反馈进行修改，例如在完成阻力训练练习的设备选项中增加手腕重量。CAB的总体反馈对于在启动可行性测试之前评估拟议的运动训练计划的适当性是非常宝贵的。这份报告为寻求社区参与的研究方法创造产品和干预措施的研究人员提供了一个模式和指导。
Exercise is a safe, evidence-based approach for improving symptoms such as mobility impairment, cognitive dysfunction, and fatigue; however, persons with multiple sclerosis (MS) who use wheelchairs for mobility have been excluded from most research. This paper describes our approach for recruiting ten community advisor board (CAB) members and partnering with them on developing a novel home-based exercise training program for wheelchair users with MS. The exercise training program, which was developed based on initial qualitative research, includes a progressive exercise prescription, equipment, and one-on-one behavioural coaching based on Social Cognitive Theory. The CAB members convened in groups of five people for five meetings online, using virtual conference software. The CAB meetings each lasted approximately 1-hour and notes were transcribed into digital format for data analyses. Content analysis identified elements that aligned with meeting foci (i.e., prescription, equipment, coaching, and outcomes). Feedback was divided into categories to refine the program, specifically modifying, adding, or retaining content and/or activities. CAB member feedback was very positive and emphasized potential additions to the materials presented. The research team proposed implementing modifications based on the CAB member feedback such as adding wrist weights to the equipment options for completing resistance training exercises. The overall CAB feedback was invaluable for assessing the appropriateness of the proposed exercise training program before initiating feasibility testing. This report provides a model and guidance for researchers who seek community-engaged research approaches in creating products and interventions.
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影响因子：
0.9
作者：
Bishop, Malachy;Dennis, Katherine;Frain, Michael
通讯作者：
Frain, Michael
DOI：
10.1016/j.apmr.2013.07.011
发表时间：
2013-12-01
影响因子：
4.3
作者：
Klaren, Rachel. E.;Motl, Robert W.;Pilutti, Lara A.
通讯作者：
Pilutti, Lara A.
影响因子：
5.8
作者：
Motl, Robert W.;Dlugonski, Deirdre;Mohr, David C.
通讯作者：
Mohr, David C.
影响因子：
--
作者：
Learmonth, Yvonne C;Rice, Ian M;Motl, Robert W
通讯作者：
Motl, Robert W
影响因子：
3.8
作者：
Elo, Satu;Kyngaes, Helvi
通讯作者：
Kyngaes, Helvi