Barriers to and solutions for representative inclusion across the lifespan and in life course research: The need for structural competency highlighted by the COVID-19 pandemic.
Barriers to and solutions for representative inclusion across the lifespan and in life course research: The need for structural competency highlighted by the COVID-19 pandemic.
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DOI：
10.1017/cts.2022.510
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发表时间：
2023
影响因子：
2.6
通讯作者：
McColley, Susanna A.
中科院分区：
文献类型：
--
作者：
LeCroy, Madison N.;Potter, Lindsey N.;Bandeen-Roche, Karen;Bianco, Monica E.;Cappola, Anne R.;Carter, Ebony B.;Dayan, Peter S.;Eckstrom, Elizabeth;Edwards, Dorothy F.;Farabi, Sarah S.;Fisher, Sheehan D.;Giordano, Judy;Hanson, Heidi A.;Jenkins, Emerald;Juhn, Young;Kaskel, Frederick;Stake, Christine E.;Reeds, Dominic N.;Schleiss, Mark R.;Wafford, Q. Eileen;McColley, Susanna A.
关键词：
在研究中排除特殊人群（老年人;孕妇，儿童和青少年;社会经济地位较低和/或生活在农村社区的个人;来自种族和少数民族群体的人;来自性或性别少数群体的个人;残疾人）是一个普遍存在的问题，尽管美国国立卫生研究院和其他组织做出了努力和政策变化。这些人口受到健康的社会决定因素的不利影响，减少了参与生物医学研究的机会和能力。2020年3月，西北大学临床与转化科学研究所主办了“生命周期与生命历程研究：整合策略”“非会议”，讨论生物医学研究中特殊人群代表性不足的障碍和解决方案。2019冠状病毒病大流行凸显了在研究中排除代表性人群会如何增加卫生不公平。我们应用此次会议的结果，对招募和保留研究中代表性人群的障碍和解决方案进行了文献综述，并讨论了研究结果对正在进行的COVID-19大流行期间进行的研究的重要性。我们强调了SDOH的作用，回顾了代表性不足的障碍和解决方案，并讨论了结构性能力框架对于改善特殊人群的研究参与和保留的重要性。
Exclusion of special populations (older adults; pregnant women, children, and adolescents; individuals of lower socioeconomic status and/or who live in rural communities; people from racial and ethnic minority groups; individuals from sexual or gender minority groups; and individuals with disabilities) in research is a pervasive problem, despite efforts and policy changes by the National Institutes of Health and other organizations. These populations are adversely impacted by social determinants of health (SDOH) that reduce access and ability to participate in biomedical research. In March 2020, the Northwestern University Clinical and Translational Sciences Institute hosted the “Lifespan and Life Course Research: integrating strategies” “Un-Meeting” to discuss barriers and solutions to underrepresentation of special populations in biomedical research. The COVID-19 pandemic highlighted how exclusion of representative populations in research can increase health inequities. We applied findings of this meeting to perform a literature review of barriers and solutions to recruitment and retention of representative populations in research and to discuss how findings are important to research conducted during the ongoing COVID-19 pandemic. We highlight the role of SDOH, review barriers and solutions to underrepresentation, and discuss the importance of a structural competency framework to improve research participation and retention among special populations.
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