'I can't cope with multiple inputs': a qualitative study of the lived experience of 'brain fog' after COVID-19.
'I can't cope with multiple inputs': a qualitative study of the lived experience of 'brain fog' after COVID-19.
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DOI：
10.1136/bmjopen-2021-056366
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发表时间：
2022-02-11
期刊：
影响因子：
2.9
通讯作者：
Greenhalgh T
中科院分区：
文献类型：
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作者：
Callan C;Ladds E;Husain L;Pattinson K;Greenhalgh T
探索“脑雾”的生活体验-COVID-19后可能出现的各种神经认知症状。一项英国范围的纵向定性研究，包括在线焦点小组和电子邮件随访。50名参与者是从之前的长期COVID-19生活经历的定性研究（n=23）和COVID-19后持续神经认知症状的人的在线支持小组（n=27）中招募的。在远程焦点小组中，参与者被邀请描述他们的神经认知症状并评论他人的陈述。4-6个月后通过电子邮件对个人进行随访。在NVIVO中对数据进行录音、转录、匿名和编码。他们由一个拥有全科医学、临床神经科学、慢性病社会学和服务提供方面专业知识的跨学科团队进行分析，并由有脑雾生活经验的人进行检查。在50名参与者中，42名是女性，32名是白色英国人。大多数人从未因COVID-19住院。定性分析揭示了以下主题：对“脑雾”一词的适当性有不同的看法;对神经认知症状经历的丰富描述（特别是执行功能，注意力，记忆力和语言），说明疾病如何随着时间的推移而波动和进展;这种情况对人际关系，个人和职业身份的深刻心理影响;内疚，羞耻和耻辱的自我感知;用于自我管理的策略;访问和导航医疗保健系统的挑战;以及参与者对解释其症状的物理机制的搜索。这些定性研究结果补充了对COVID-19后神经认知症状的流行病学和机制的研究。为这类患者提供的服务应包括：与临床医生保持持续的治疗关系，该临床医生在其个人、社会和职业背景下与他们的神经认知症状经验相结合，以及提供包括神经认知症状在内的专家服务，这些服务应是可获得的、易于导航的、全面的和跨学科的。
To explore the lived experience of ‘brain fog’—the wide variety of neurocognitive symptoms that can follow COVID-19. A UK-wide longitudinal qualitative study comprising online focus groups with email follow-up. 50 participants were recruited from a previous qualitative study of the lived experience of long COVID-19 (n=23) and online support groups for people with persistent neurocognitive symptoms following COVID-19 (n=27). In remotely held focus groups, participants were invited to describe their neurocognitive symptoms and comment on others’ accounts. Individuals were followed up by email 4–6 months later. Data were audiotaped, transcribed, anonymised and coded in NVIVO. They were analysed by an interdisciplinary team with expertise in general practice, clinical neuroscience, the sociology of chronic illness and service delivery, and checked by people with lived experience of brain fog. Of the 50 participants, 42 were female and 32 white British. Most had never been hospitalised for COVID-19. Qualitative analysis revealed the following themes: mixed views on the appropriateness of the term ‘brain fog’; rich descriptions of the experience of neurocognitive symptoms (especially executive function, attention, memory and language), accounts of how the illness fluctuated—and progressed over time; the profound psychosocial impact of the condition on relationships, personal and professional identity; self-perceptions of guilt, shame and stigma; strategies used for self-management; challenges accessing and navigating the healthcare system; and participants’ search for physical mechanisms to explain their symptoms. These qualitative findings complement research into the epidemiology and mechanisms of neurocognitive symptoms after COVID-19. Services for such patients should include: an ongoing therapeutic relationship with a clinician who engages with their experience of neurocognitive symptoms in its personal, social and occupational context as well as specialist services that include provision for neurocognitive symptoms, are accessible, easily navigable, comprehensive and interdisciplinary.
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影响因子：
3.3
作者：
Ferrucci R;Dini M;Groppo E;Rosci C;Reitano MR;Bai F;Poletti B;Brugnera A;Silani V;D'Arminio Monforte A;Priori A
通讯作者：
Priori A
影响因子：
15.1
作者：
Hampshire A;Trender W;Chamberlain SR;Jolly AE;Grant JE;Patrick F;Mazibuko N;Williams SC;Barnby JM;Hellyer P;Mehta MA
通讯作者：
Mehta MA
影响因子：
120.7
作者：
Charon, R
通讯作者：
Charon, R
影响因子：
3.2
作者：
GLASER, BG
通讯作者：
GLASER, BG
影响因子：
64.8
作者：
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