Lay perceptions of evidence-based information--a qualitative evaluation of a website for back pain sufferers.
Lay perceptions of evidence-based information--a qualitative evaluation of a website for back pain sufferers.
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对基于循证的信息进行了认识 - 对背痛患者网站的定性评估。
DOI：
10.1186/1472-6963-6-34
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发表时间：
2006-03-15
影响因子：
2.8
通讯作者：
Carlsen, B
中科院分区：
文献类型：
--
作者：
Glenton, C;Nilsen, ES;Carlsen, B
在基于证据的患者选择中，患者可以获得有关医疗保健选择有效性的基于研究的信息，并鼓励患者在治疗决策中使用这些信息。近年来，这一概念越来越受欢迎。然而，我们对用户对使用基于研究的信息的态度仍然知之甚少，可能是因为人们尚未接触过此类信息。在开发 BackInfo 网站后，我们对 Cochrane 系统评价腰痛影响的结果进行了调整并呈现给非专业用户，我们评估了用户对此信息的反应。会议前向 18 名慢性背痛患者发送了该网站的链接，随后他们召开了焦点小组会议。焦点小组表明，使用 BackInfo 基于研究的信息的最重要挑战并不主要与信息的理解或呈现有关，而主要与参与者对研究和研究人员的可信度的态度以及研究结果对个人的适用性有关。参与者对研究缺乏信任以及他们将这项研究应用到自己的情况中的明显困难的可能解释包括一般公众可能典型的方面，包括媒体对研究的介绍，以及对研究证据的不熟悉和感觉距离。对于患有慢性且病情不明的患者群体来说，其他方面可能是典型的，例如对医疗保健机构普遍缺乏信任。为了提高研究证据的可信度和适用性，研究信息的提供者可以探索多种可能性，包括使用个人故事来说明研究结果。
In an evidence-informed patient choice the patient has access to research-based information about the effectiveness of health care options and is encouraged to use this information in treatment decisions. This concept has seen growing popularity in recent years. However, we still know relatively little about users' attitudes to the use of research-based information, possibly because people have been unexposed to this type of information. After developing the BackInfo website where the results of Cochrane systematic reviews on the effects of low back pain were adapted and presented to lay users we evaluated how users responded to this information. Focus group meetings were held with 18 chronic back pain sufferers, after they had been sent a link to the website before the meetings. The focus groups suggest that the most important challenges to the use of BackInfo's research-based information are not primarily tied to the comprehension or presentation of the information, but are mainly associated with participants' attitudes towards the credibility of research and researchers, and the applicability of research results to themselves as individuals. Possible explanations for participants' lack of trust in research and their apparent difficulties in applying this research to their own situations include aspects that may be typical for the general public including the media's presentation of research, and a lack of familiarity with and feelings of distance to research evidence. Other aspects may be typical for patient groups with chronic and unclear medical conditions, such as a lack of trust in the health care establishment in general. In order to enhance the credibility and applicability of research evidence, providers of research-based information could explore a number of possibilities including the use of including personal stories to illustrate the research outcomes.
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影响因子：
3.5
作者：
Rozmovits, L;Ziebland, S
通讯作者：
Ziebland, S
影响因子：
105.7
作者：
Eysenbach, G;Köhler, C
通讯作者：
Köhler, C
影响因子：
2.2
作者：
MALTERUD, K
通讯作者：
MALTERUD, K
DOI：
10.1017/s0266462300012204
发表时间：
1998-03-01
影响因子：
3.2
作者：
Entwistle, VA;Sheldon, TA;Watt, IS
通讯作者：
Watt, IS
影响因子：
105.7
作者：
Leydon, GM;Boulton, M;McPherson, K
通讯作者：
McPherson, K