Awareness and perceptions of Long COVID among people in the REACT programme: Early insights from a pilot interview study.
Awareness and perceptions of Long COVID among people in the REACT programme: Early insights from a pilot interview study.
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DOI：
10.1371/journal.pone.0280943
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发表时间：
2023
期刊：
影响因子：
3.7
通讯作者：
Ward, Helen
中科院分区：
文献类型：
--
作者：
Cooper, Emily;Lound, Adam;Atchison, Christina S.;Whitaker, Matthew;Eccles, Caroline;Cooke, Graham;Elliott, Paul;Ward, Helen
长冠状病毒病是一个患者自创的术语，用于描述SARS-CoV-2感染后出现的新的或持续的症状。实时评估社区传播-长期冠状病毒感染(REACT-LC)研究旨在了解感染后体验的变化，并确定与长期冠状病毒感染相关的生物、社会和环境因素。我们进行了一项试验性访谈研究，为REACT-LC定性研究的设计、招聘方法和主题指南提供信息。我们试图获得对新的或持续的症状的经验和归因的初步见解，以及对长期COVID术语的认识或感知的适用性。如果人们参加了REPACT，一项随机的基于社区的流行率研究，并有记录的SARS-CoV-2感染史，就会被邀请到REPACT-LC评估中心。我们邀请了来自Reaction-LC评估中心的报告持续症状超过12周的人参加了采访。我们进行了面对面和在线半结构化访谈，并用主题分析进行了转录和分析。我们采访了13名参与者(6名女性，7名男性，平均年龄31岁)。参与者报告说，新的和持续的症状差异很大，这些症状通常是波动的或不可预测的。一些参与者对他们的持续性症状与新冠肺炎之间的联系充满信心；然而，另一些人不清楚症状的根本原因，或者认为公共卫生措施(如封锁)的影响起到了作用。我们发现长期COVID一词在认知和感知适用性方面存在差异。这项试点为我们的定性研究提供了设计、招募方法和主题指南。它提供了对患有持续性症状的人的不同经历的初步见解，包括症状归因和长期冠状病毒感染这一术语的可感知适用性的差异。这一变化显示了从具有全国代表性的持续症状参与者样本中招募人才的价值。
Long COVID is a patient-made term describing new or persistent symptoms experienced following SARS-CoV-2 infection. The Real-time Assessment of Community Transmission-Long COVID (REACT-LC) study aims to understand variation in experiences following infection, and to identify biological, social, and environmental factors associated with Long COVID. We undertook a pilot interview study to inform the design, recruitment approach, and topic guide for the REACT-LC qualitative study. We sought to gain initial insights into the experience and attribution of new or persistent symptoms and the awareness or perceived applicability of the term Long COVID. People were invited to REACT-LC assessment centres if they had taken part in REACT, a random community-based prevalence study, and had a documented history of SARS-CoV-2 infection. We invited people from REACT-LC assessment centres who had reported experiencing persistent symptoms for more than 12 weeks to take part in an interview. We conducted face to face and online semi-structured interviews which were transcribed and analysed using Thematic Analysis. We interviewed 13 participants (6 female, 7 male, median age 31). Participants reported a wide variation in both new and persistent symptoms which were often fluctuating or unpredictable in nature. Some participants were confident about the link between their persistent symptoms and COVID-19; however, others were unclear about the underlying cause of symptoms or felt that the impact of public health measures (such as lockdowns) played a role. We found differences in awareness and perceived applicability of the term Long COVID. This pilot has informed the design, recruitment approach and topic guide for our qualitative study. It offers preliminary insights into the varied experiences of people living with persistent symptoms including differences in symptom attribution and perceived applicability of the term Long COVID. This variation shows the value of recruiting from a nationally representative sample of participants who are experiencing persistent symptoms.
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