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Engaging patients with rare diseases in research to improve their care

Engaging patients with rare diseases in research to improve their care
让罕见疾病患者参与研究以改善他们的护理
批准号：
363891
负责人：
Boycott Kym M
金额：
$1.72万
依托单位：
Children's Hospital of Eastern Ontario- Ottawa Children's Treatment Centre
依托单位国家：
加拿大
项目类别：
Operating Grants
财政年份：
2016
资助国家：
加拿大
项目状态：
已结题
起止时间：
2016-12-01 至 2017-12-01
来源：
https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=363891&lang=en
关键词：
Genetics Patient Engagement Quality Improvement Rare Disease Research Priorities

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中文摘要
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英文摘要
Researchers and clinicians within the CHEO Regional Genetics Program recognize the critical importance of the patient voice in research and care, especially in the field of rare disease. At the same time, patients and families desire meaningful input into
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A Canadian knowledge-to-action roadmap for evidence-informed implementation of first-tier clinical genome-wide sequencing for rare disease (K2A-RD)
Care4Rare-SOLVE
Canada Research Chair - Tier 1
  • 批准号：
    404325
  • 项目类别：
  • 资助金额：
    $101.99万
  • 财政年份：
    2018
  • 负责人：
    Boycott Kym M
  • 依托单位：
    University of Ottawa
Care4Rare Canada: Harnessing multi-omics to deliver innovative diagnostic care for rare genetic diseases in Canada (C4R-SOLVE)
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