Disability Expertise and Design Justice for Post-COVID Equity

残疾专业知识和后新冠病毒公平的设计正义

• 批准号: 2043833
• 负责人: Mara Mills
• 金额: $ 61.85万
• 依托单位: New York University
• 依托单位国家: 美国
• 项目类别: Standard Grant
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-04-01 至 2024-03-31
• 项目状态: 已结题
• 来源: https://www.nsf.gov/awardsearch/showAward?AWD_ID=2043833&HistoricalAwards=false
• 关键词: Disability; Expertise; Design; Justice; Post

This project will analyze the lives of disabled and chronically ill people during the COVID-19 pandemic to understand their experiences and capture the strategies that they have developed for surviving under new, difficult conditions. Disabled people, especially people of color and those living in nursing homes, have been at greatest risk of infection and death from COVID-19. Documenting and interpreting disability expertise and the methods by which by which marginalized groups respond to the pandemic will provide crucial information for helping to address the inequities for people with disabilities as they manage health risk post-COVID and in relation to future pandemics and social crises. Researchers will collaborate with community members to collect memories, stories, artwork, and other materials to build a publicly accessible archive know as the “Disability COVID Chronicles.” Conversations on social media, records of digital public meetings, and photographs of street art and actions that are otherwise ephemeral will also be collected, interpreted, and preserved. This archive will be of value for scholars and for those working to achieve better conditions for disabled citizens in the future. Project findings will be widely disseminated in public and academic publications and through social media, events, and city partnerships.This project will collect and analyze data about COVID-19 design related issues (e.g., congregate living, telework, tele-therapy) and compare and analyze cases from a “design justice” perspective, focusing on innovative uses of remote technology and infrastructure. It focuses on four social groups that experts and the disabled anticipate will experience prolonged impacts from COVID-19. These groups include: (1) People with chronic fatigue syndrome who can serve as models of post-viral syndromes and survivorship with longstanding expertise in remote work and tele-intimacy; (2) Adults with intellectual disabilities and their families, whose high infection and death rates have highlighted the hazards of congregate housing, and who are actively generating new designs for long-term assisted living; (3) Black Disabled Lives Matter activists who underscore the intersection of race and disability in COVID health risks and are developing accessible physical and digital tools for supporting online advocacy and protests; and (4) Black subjects facing mental health challenges. The project will also consider the potentials for new remote practices in mobile crisis intervention, peer counseling by trained mental health patients, and teletherapy pioneered by groups responding to these challenges to help support the disabled community. Findings will be published in academic journals and publicly accessible white papers and public media.This award reflects NSF's statutory mission and has been deemed worthy of support through evaluation using the Foundation's intellectual merit and broader impacts review criteria.

该项目将分析残疾人和慢性病患者在COVID-19大流行期间的生活，以了解他们的经历，并捕捉他们为在新的困难条件下生存而制定的策略。残疾人，特别是有色人种和住在养老院的人，感染和死亡的风险最大。记录和解释残疾人专业知识以及边缘化群体应对这一流行病的方法，将为帮助解决残疾人在管理新冠疫情后以及与未来流行病和社会危机相关的健康风险时面临的不平等问题提供重要信息。研究人员将与社区成员合作，收集记忆，故事，艺术品和其他材料，以建立一个可公开访问的档案，称为“残疾COVID编年史”。社交媒体上的对话，数字公共会议的记录，以及街头艺术和其他短暂行为的照片也将被收集，解释和保存。这一档案将对学者和那些致力于改善残疾公民未来条件的人具有价值。项目研究结果将通过公共和学术出版物以及社交媒体、活动和城市合作伙伴关系广泛传播。该项目将收集和分析有关COVID-19设计相关问题的数据（例如，聚集生活、远程工作、远程治疗），并从“设计公正”的角度比较和分析案例，重点是远程技术和基础设施的创新使用。它侧重于专家和残疾人预计将受到COVID-19长期影响的四个社会群体。这些团体包括：（1）患有慢性疲劳综合症的人，他们可以作为病毒感染后综合症的模型，并在远程工作和远程亲密关系方面具有长期专业知识;（2）患有智力残疾的成年人及其家人，他们的高感染率和死亡率突出了集体住房的危险，他们正在积极创造长期辅助生活的新设计;（3）“黑人残疾人的生命也是命”（Black Disabled Lives Matter）活动家，他们强调种族和残疾在COVID健康风险中的交叉点，并正在开发无障碍的物理和数字化工具，以支持在线宣传和抗议活动;以及（4）面临心理健康挑战的黑人受试者。该项目还将考虑在移动的危机干预中新的远程实践的潜力，由受过训练的精神健康患者进行同伴咨询，以及由应对这些挑战的团体开创的远程治疗，以帮助支持残疾人社区。研究结果将发表在学术期刊和公众可访问的白色论文和公共媒体上。该奖项反映了NSF的法定使命，并被认为值得通过使用基金会的知识价值和更广泛的影响审查标准进行评估来支持。