Can and should we link data at a national level? Vaccine safety surveillance: A case study

我们可以而且应该在国家层面链接数据吗？

• 批准号: LP0882394
• 负责人: A/Prof Michael Gold
• 金额: $ 33.5万
• 依托单位: The University of Adelaide
• 依托单位国家: 澳大利亚
• 项目类别: Linkage Projects
• 财政年份: 2008
• 资助国家: 澳大利亚
• 起止时间: 2008-07-11 至 2013-12-31
• 项目状态: 已结题
• 来源: https://dataportal.arc.gov.au/RGS/Web/Grants/LP0882394
• 关键词: should; link; data; national; level

This project provides many benefits for the community, exploring the legal and ethical issues around consent for data linkage, convening Citizens' Juries to weigh the evidence and make recommendations. It addresses National Research Priorities: Promoting and Maintaining Good Health and Safeguarding Australia as well as National Collaborative Research Infrastructure Strategy priorities. It uses vaccine safety surveillance as a case study to evaluate the effectiveness of data linkage (through linking Commonwealth immunisation data to state hospital data) and the methodologies and lessons learnt from cross jurisdictional data linkage can be transferred to other areas.

该项目为社区提供了许多好处，探讨了围绕同意数据链接的法律的和道德问题，召集公民陪审团权衡证据并提出建议。 它涉及国家研究优先事项：促进和保持良好的健康和保障澳大利亚以及国家合作研究基础设施战略的优先事项。它使用疫苗安全监测作为案例研究，以评估数据链接的有效性（通过将联邦免疫接种数据与州立医院数据链接），从跨管辖区数据链接中吸取的方法和经验教训可以转移到其他领域。