Development and psychometric evaluation of an instrument for measuring social participation in young persons

社会参与是青少年发展的重要组成部分，因为它影响着青少年的社会体验、社会情绪发展和能力体验。在过去几十年的社会政治发展框架内确立了社会参与的重要性，并在康复进程领域占了上风。社会参与是ICF-CY对健康和功能能力的社会观点，也是《Gesetz zur Stärkung der Teilhabe and Selbstbstimung von Menschen MIT Behinderungen》的中心内容。建议将社会参与作为康复和支持措施的主要目标。然而，德国还没有一个有充分依据的评估工具来收集和评估青少年的社会参与。本项目的目的是开发、测试、试验和评估12至17岁青少年的社会参与评估工具。在顺序混合方法研究中，有身体残疾的和没有身体残疾的青少年将以半结构讨论的方式进行访谈。他们将被问及他们的经历和对社会参与的满意度，以及他们对自决重要性的个人看法。青少年的观点将得到重点小组的补充，这些小组一方面将与社会儿科护理专家一起开展工作，另一方面将与父母一起开展工作。这些不同的观点将为文书的发展提供尽可能多的知识。目前的国际调查结果也将被纳入其中。在第一步研究结果的基础上，将开发一种社会参与工具。青年目标群体以及专家将从内容方面对该文书进行评价。该评估工具将在社会儿科中心和康复诊所实施，并将进行先导性研究和心理测量评估。本研究提供了关于青少年社会参与的有意义的数据，使描述理论结构成为可能。还包括社会参与与青年生活的相关性以及康复过程中的目标规划。此外，社会参与作为立法者提供的核心目标之一，可以在个别措施中进行评估。所开发的工具可用于科学，以确定弱势群体以及对青年个人发展可能造成的不利影响。此外，它还有助于通过具体的干预来弥补这些不利因素。在实践中，该工具可用于与青少年一起确定康复目标，并评估目标的实现情况。

Social participation is an important component in the development of young persons because it influences social experience, social-emotional development, and competence experience. The importance of social participation has been established within the framework of socio-political developments of the last decades and has prevailed in the field of rehabilitation processes. Social participation is the social perspective of health and functional capability in the ICF-CY and it is also a central aspect in the "Gesetz zur Stärkung der Teilhabe und Selbstbestimmung von Menschen mit Behinderungen". It is recommended to regard social participation as a main goal of rehabilitation and support measures.However, there is no well-founded assessment instrument for collecting and evaluating social participation in young personsavailable in Germany.The aim of this project is to develop, test, pilot, and evaluate psychometrically a social participation assessment instrument for young persons between 12 and 17 years.In a sequential mixed-method study, young persons with and without physical impairments will be interviewed in semi-structured discussions. They will be asked about their experiences and their satisfaction with social participation as well as their individual opinion about the importance of self-determination. The perspective of the young persons will be supplemented by focus groups that will be conducted on the one hand with experts from the social pediatric care and on the other hand with parents. These different perspectives will provide the greatest possible gain in knowledge for the development of the instrument. The current international findings will be integrated as well. On the basis of the results of the first step of the study, a social participation instrument will be developed. The target group of young persons as well as the experts will evaluate the instrument in terms of content. The assessment instrument will be implemented in social pediatric centers as well as in rehabilitation clinics, and a pilot study will be conducted and evaluated psychometrically.This study provides meaningful data about the social participation of young persons, which make it possible to describe the theoretical construct. The relevance of social participation for the life of young persons as well as the goal planning in rehabilitative processes is also included. Further, social participation as one of the core target provided by the legislator can be evaluated in individual measures. The developed instrument can be utilized in science to identify disadvantaged groups and the possible disadvantages for the individual development of young persons. Furthermore, it helps to compensate these disadvantages, by specific interventions. In practice, the instrument can be used to determine the goals of rehabilitation together with the young person, and to evaluate the achievement of the goal.