The Development and Psychometric Evaluation of the SIRS: A Social Isolation Risk Scale for Survivors of Head and Neck Cancer

SIRS 的发展和心理测量评估：头颈癌幸存者的社会孤立风险量表

基本信息

批准号：
10729500
负责人：
Allison Marziliano
金额：
$ 15.66万
依托单位：
FEINSTEIN INSTITUTE FOR MEDICAL RESEARCH
依托单位国家：
美国
项目类别：
财政年份：
2023
资助国家：
美国
起止时间：
2023-08-24 至 2025-07-31
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10729500
关键词：
Acute Address Aftercare Anxiety Assessment tool Behavioral Research Body Image Cancer Center Cancer Survivor Cardiovascular Diseases Choking Clinic Clinic Visits Clinical Data Deglutition Demographic Survey Development Disease Distress Evaluation Face Factor Analysis Feedback Gagging Generations Goals Guidelines Head and Neck Cancer Health Impairment Individual Interview Larynx Loneliness Longitudinal Studies Malignant Neoplasms Measurement Measures Mental Depression Mental Health Methods Modeling Nose Oral cavity Oropharyngeal Outcome Persons Pharyngeal structure Population Populations at Risk Prevention strategy Property Psyche structure Psychometrics Quality of life Review Literature Risk Risk Factors Screening procedure Sinus Social Desirability Social Development Social isolation Societies Speech Stroke Suggestion Survival Rate Survivors Symptoms Taste Perception Testing Time Treatment Side Effects United States Visit brief screening evidence base experience facial disfigurement improved innovation member physical conditioning physical symptom prevent recruit social survivorship

项目摘要

Head and neck cancer (HNC) survivors have unique survivorship challenges (e.g., facial disfigurement), which often lead to social isolation. To address social isolation and prevent associated negative health outcomes, it is critical to identify HNC survivors at risk for social isolation. Currently, these efforts are hampered by a lack of screening tools that are both sufficiently brief to be used routinely in a fast-paced clinic and capture the risk factors unique to HNC that potentiate social isolation. Hence, the overall purpose of this proposal is to develop and conduct a preliminary psychometric evaluation of the Social Isolation Risk Scale (SIRS), a brief screening tool to identify HNC survivors at risk for social isolation. Aim 1: Develop the SIRS: Item pool generation (1a): Our team will use inductive and deductive methods to generate a pool of potential scale items (i.e., reasons why HNC survivors socially isolate, general social isolation risk factors) through discussions among HNC survivor members of our advisory board, and experts in HNC, social isolation, and measurement, as well as a literature review. Item pool refinement (1b): We will refine the item pool through 1-on-1 interviews with N = 30 socially isolated HNC survivors. We will solicit feedback on item relevance (quantitative scale 1 to 5, higher values indicate more relevance), addition/deletion of items (items will be added/deleted if 70% of those asked endorse addition/deletion), and suggestions for alternative wording via qualitative feedback. At the conclusion of 1b, we will have a ~16-item SIRS (~8 items related to non-physical social isolation risk factors and ~8 items related to physical social isolation risk factors), to undergo preliminary psychometric evaluation during Aim 2b. Aim 2: Administer (2a) and conduct preliminary psychometric evaluation (2b) of the SIRS. 2a. We will conduct a 3-month longitudinal study, in which we will administer the SIRS, a demographic survey, and a battery of validated assessments of social isolation, general distress, loneliness, social connectedness, social desirability, and HNC-related quality of life, to N=130 HNC survivors at their 6-month (T1) and 9-month (T2) post-treatment completion visits. 2b. We will perform preliminary psychometric analyses of the SIRS, evaluating both items’ properties and SIRS’ properties, as well as perform a factor analysis. Based on a priori established guidelines, we will select a final set of items to retain for the SIRS, with the goal of ~10 items in total (~5 items related to physical risk factors and ~5 items related to non- physical risk factors). This project is (a) significant, as it will improve the long-term health of a substantial (at least 36%) subset of HNC survivors and will serve as a model for identifying and preventing social isolation in other at-risk groups; and (b) innovative, as it approaches the problem from a different perspective- focusing on the root cause (i.e., social isolation) of negative outcomes, rather than the negative outcomes themselves.

头颈癌（HNC）表面表面表面有独特的表面挑战（例如面部毁容），这是通常导致社会隔离。解决社会隔离并防止相关的负面健康结果，这是确定有社会隔离风险的HNC存活至关重要。目前，由于缺乏这些努力，这些努力受到了阻碍筛查工具都足够简短，可以在快节奏的诊所中定期使用并捕获风险 HNC独有的因素，潜在的社会隔离。因此，该提议的总体目的是对社会隔离风险量表（SIR）进行初步心理测量评估，简短的筛选工具以识别有社会隔离风险的HNC冲浪者。目标1：开发SIRS：项目池一代（1a）：我们的团队将使用电力和演绎方法来产生潜在规模的池项目（即HNC生存在社会隔离的原因，一般社会隔离风险因素）通过我们顾问委员会的HNC冲头成员与HNC，社会隔离和专家之间的讨论测量以及文献综述。项目池细化（1B）：我们将通过 n = 30个社会孤立的HNC存活的1对1访谈。我们将征求有关项目相关性的反馈（定量量表1至5，较高的值表示更多相关性），项目的添加/删除（项目将为添加/删除的是否有70％的人要求添加/删除），并提出有关替代措辞的建议定性反馈。在1B的结论中，我们将有一个约16个项目的SIRS（与非物理有关的〜8个项目社会隔离风险因素和〜8个与物理社会隔离风险因素有关的项目），以初步 AIM 2B期间的心理测量评估。目标2：管理（2a）并进行初步心理测量学 SIRS评估（2b）。 2a。我们将进行3个月的纵向研究，其中我们将进行管理 SIRS，一项人口调查以及一系列对社会隔离，一般困扰的评估，孤独，社会联系，社会可取性和与HNC相关的生活质量，n = 130 HNC幸存者他们的6个月（T1）和9个月（T2）的治疗后完成访问。 2b。我们将执行初步 SIRS的心理测量分析，评估项目的属性和Sirs的特性，并执行一个因素分析。根据先验已建立的准则，我们将选择一组最终项目以保留 SIRS，总共约有10个项目（与物理风险因素有关的5个项目，与非 - 相关的5个项目身体危险因素）。该项目是（a）重要的，因为它将改善实质的长期健康（在至少36％）HNC表面表面的子集，并将作为识别和防止社会隔离的模型其他高危人群；（b）创新的，因为它从不同的角度探讨了问题负面结果的根本原因（即社会隔离），而不是负面结果本身。