Study on assessing of subjective QOL of children and adults with severe motor and intellectual disabilities

严重运动和智力障碍儿童和成人主观生活质量评估研究

基本信息

批准号：
14380105
负责人：
GOMA Hideyo
金额：
$ 1.98万
依托单位：
Nara University of Education
依托单位国家：
日本
项目类别：
Grant-in-Aid for Scientific Research (B)
财政年份：
2002
资助国家：
日本
起止时间：
2002 至 2004
项目状态：
已结题

来源：
https://kaken.nii.ac.jp/en/grant/KAKENHI-PROJECT-14380105/
关键词：
QOL (quality of life)children with severe motor and intellectual disabilities 主観的満足度質問紙微笑行動主体的表現 Quality of Life 評価表

项目摘要

To assess subjective QOL(quality of life) of children with both motor and intellectual disabilities. Participants (aged 6-18 years) were 90 subjects and were interviewed personally. The questionnaire is consists of 36 questions covering the 8 domains, which were based on the QOL-26 WHO. The subjects were divided into four groups (A : children with mild motor and mild intellectual disabilities, B : children with severe motor and mild intellectual disabilities, C : children with mild motor and severe intellectual disabilities, D : children with severe motor and severe intellectual disabilities). Result : They answered by way of the Language, eyes, expression such as smile, motion or tense of extremities and so on. Most of children answered that they are happy in general, their needs are satisfied, and they are content with supports given by the people around them. Total scores of group C (83.5±12.1:mean±SD) and group D (82.7±9.0) were significantly lower than group A (92.0±9.0) and group B (90.5±9.0). As for details of each domain, in "Self-impression", "Self-determination and Choices" and "Chances to do", score of group D was lower than score of group A. Conclusion : These results indicate that the lack of understanding and insufficiency in preparing choices affect children's QOL, and better supporting system of needed.

评估运动和智力残疾儿童的主观质量（生活质量）。参与者（6-18岁）是90名受试者，并亲自接受了采访。问卷由36个涵盖8个域的问题组成，这些问题基于QOL-26 WHO。受试者分为四组（A：轻度运动和轻度智力残疾的儿童，B：严重运动和轻度智障的儿童，C：轻度运动和严重智力障碍的儿童，D：严重运动和严重智力障碍的儿童）。结果：他们通过语言，眼睛，表达（例如微笑，运动或四肢紧张等）回答。大多数孩子都回答说，他们一般都很高兴，他们的需求得到满足，并且对周围人的支持感到满意。 C组（83.5±12.1：平均值±SD）和D组（82.7±9.0）的总得分显着低于A组（92.0±9.0）和B组（90.5±9.0）。至于每个领域的详细信息，在“自我印象”，“自决和选择”和“机会”中，D组的得分低于A组的得分。结论：这些结果表明，这些结果缺乏理解和不足的准备选择会影响儿童的QOL，以及更好地支持所需系统。