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Investigation on the pediatric home care.

儿科家庭护理调查。

基本信息

批准号：
14572273
负责人：
KUWATA Hiromi
金额：
$ 2.24万
依托单位：
Gifu University
依托单位国家：
日本
项目类别：
Grant-in-Aid for Scientific Research (C)
财政年份：
2002
资助国家：
日本
起止时间：
2002 至 2004
项目状态：
已结题

来源：
https://kaken.nii.ac.jp/en/grant/KAKENHI-PROJECT-14572273/
关键词：
handicapped children home care support system interview pediatric nursing 難病を持つ子

项目摘要

We investigated the real situation of the handicapped children at home, and considered on its support system in a nursing point of view. We interviewed 38 mothers taking care of handicapped children at home. The age of the children were distributed from ten months to nineteen years. They are 20 brain and nerve diseases, 5 congenital heart diseases, 1 respiratory disease, 4 endocrine diseases, 1 chromosome aberration, 3 nerve and muscle diseases, and 4 acquired encephalopathies.We found the following common problems in the home care of handicapped children in Japan.1.Mothers have to take care of children, and another family members (especially father!) are generally reluctant to put themselves into practice.2.Mothers gradually become difficult to take care of their handicapped children according to their growth.3.Mothers feel like a burden to take care of children4.Mothers feel difficult in mental care of children at their puberty.5.Mothers experienced many troubles in the school.On the … More demands for the medical staffs, we found :1.Improvement in the quality of medical and nursing technology.2.Convenience for getting information of diseases and disorders.3.Availability of the information on the social welfare.4.Expansion and improvement the medical and social facilities.5.Clarification of the management during the emergency.6.Reduction of the economical burden.7.Reinforcement of the connections of medicine, education and family.The circumstances surrounding mothers with handicapped children have unaltered essentially. The real situations are as follows :1.Mothers are not able to possess the actual image of the home care at the time of discharge.2.Mothers feel like a burden especially when children need the medical care and cannot expect fathers' cooperation for the children care (especially medical care).3.Mothers are generally sleepless with worry about their children's futures.Moreover many problems and the difficulties appear in school life and also in adolescence.Home care is care of children in their own home, provided by or supervised through a certified home health care or community health care agency (Child health nursing Unit 3, Adele Pillitteri, 1999). But comparing with the demands for the medical staffs, support system of pediatric home care is not enough for handicapped children now. There is hardly any public support system in consideration of mothers with handicapped children. We think the needs of family with handicapped children are essential for the reinforcement of pediatric home care. In future, we expect this research will become the basis of the support system for pediatric home care. Less

本文通过对残疾儿童在家中的真实的情况进行调查，并从护理的角度对残疾儿童的支持系统进行思考。我们采访了38位在家照顾残疾儿童的母亲。儿童年龄从10个月到19岁不等。其中脑神经疾病20种，先天性心脏病5种，呼吸系统疾病1种，内分泌疾病4种，染色体畸变1种，神经肌肉疾病3种，后天性脑病4种。我们发现日本残疾儿童的家庭护理中存在以下常见问题：1.母亲要照顾孩子，另一个家庭成员（尤其是父亲！）2.随着残疾儿童的成长，母亲对残疾儿童的照顾逐渐变得困难。3.母亲觉得照顾孩子是一种负担。4.母亲对处于青春期的儿童的心理照顾感到困难。5.母亲在学校经历了许多麻烦。 ...更多信息对医护人员的需求：1.提高医疗护理技术水平; 2.方便获取疾病信息; 3.社会福利信息的可获得性; 4.扩大和改善医疗和社会设施; 5.明确应急管理; 6.减轻经济负担; 7.加强医疗、教育和家庭的联系。真实的情况如下：1.母亲在出院时不能拥有家庭护理的实际形象。2.母亲感觉自己是一种负担，特别是当孩子需要医疗护理时，不能指望父亲在儿童护理（特别是医疗护理）方面的合作。3.母亲通常因担心孩子的未来而失眠。此外，许多问题和困难出现在学校生活和青春期。家庭护理是在自己家中对孩子的护理，由经认证的家庭保健或社区保健机构提供或监督（儿童保健护理第3单元，Adele Pillitteri，1999年）。但与对医务人员的需求相比，目前的儿科家庭护理支持系统对残疾儿童的需求还远远不够。几乎没有任何公共支助系统考虑到有残疾子女的母亲。我们认为，有残疾儿童的家庭的需要是必不可少的，以加强儿科家庭护理。在未来，我们期望这项研究将成为儿科家庭护理支持系统的基础。少