Building a family support system for children with slight developmental disorders

本研究旨在探讨轻度发展障碍儿童家长的焦虑状况。此外，我们还开始创建一个支持系统，以便家长们能够培养正确的育儿态度。本研究在鸟取大学伦理委员会批准后，我们选择了在鸟取大学儿童神经科咨询过医生的发育障碍儿童的母亲。一些母亲同意参加这项研究，所以我们采访了其中的10人。采访发现，母亲们受到以下因素的影响：1.没有人了解我的孩子或他/她的疾病; 2.很多人对有疾病的孩子抱有偏见。通过这种方式，可以清楚地看出这些母亲意识到在家庭、学校和社区中存在孤立感。他们想让人们正确地理解他们的孩子。因此，他们需要能够提供帮助的人，以及能够以值得信赖的方式进行咨询的人。他们也希望自己的孩子能得到适当的教育，能够适应社会。最后发现，他们所担心的正是支持系统所缺乏的东西。我们认为，将来有必要根据儿童的年龄和障碍类型来审查支持方式。

The purpose of this research was to clarify the anxiety which parents of children with slight developmental disorders feel. Also, the idea was to begin creating a support system so that parents can develop appropriate child care attitudes.After this research was approved by the Tottori University Ethics Committee, we selected mothers of children with developmental disorders who had consulted doctors at the Child Neurology Department at Tottori University. Some of the mothers consented to participating in this research so we interviewed 10 of them. It was found that mothers were affected by the following items as a result of the interview :1.No one understands my child or his/her disorder ;2.Many people heap prejudice on children with disorders.In this way, it was made clear that these mothers were aware of a sense of isolation in the family, at school and in the neighborhood. They want to have people understand their children correctly. So, they need people who can help and who can be consulted in a trustworthy way. They also hoped that their children could get appropriate education and to become able to adapt to society. Finally, it was found that what they were anxious about were exactly the same things which the support system lacks.We think that it is necessary to review the way of support by a child's age and the type of disorder in the future.