Mixed-methods study to develop and pilot a modular evaluation tool for patient and public involvement in health services research

混合方法研究开发和试点模块化评估工具，以促进患者和公众参与卫生服务研究

• 批准号: 511611780
• 负责人: Privatdozentin Dr. Anna Levke Brütt
• 金额: --
• 依托单位: Institut und Poliklinik für Medizinische Psychologie
• 依托单位国家: 德国
• 项目类别: Research Grants
• 资助国家: 德国
• 项目状态: 未结题
• 来源: https://gepris.dfg.de/gepris/projekt/511611780?language=en
• 关键词: Mixed; methods; study; develop; pilot

Patient and public involvement (PPI) in research is a research field that is rapidly developing internationally and recently also in Germany. As research funders and scientific journals increasingly encourage PPI, implementation is also accelerating. So far, there is only weak evidence regarding the outcomes and impacts, which are mainly based on narrative studies. There is a need to generate stronger evidence to understand which PPI approaches work best, in which contexts and with what effects. For a scientific development of the research field and the implementation of PPI in Germany, this project aims at 1. establishing an evaluation concept 2. developing a modular evaluation tool 3. piloting a modular evaluation tool The mixed-method study comprises three phases. In the first phase, meaningful and successful aspects of PPI will be explored in a web-based survey as well as through focus group interviews with researchers from the field of health services research and patients. The results are then discussed in a codesign workshop in which researchers, patients and further stakeholders consent on an evaluation framework based on a LOGIC model. In the second phase, items from internationally available instruments that evalute PPI are deductively assigned to the consented evaluation framework. Further items are developed based on the focus groups from phase 1. In addition, cognitive pretests and qualitative review will be conducted with researchers and patients in order to refine the item pool and develop an evaluation tool. In the third phase, the modular evaluation tool with modules for researchers and patients will be piloted in a web-based survey. The findings from this project make it possible to connect to the internationally developing field of PPI in research and to address relevant research gaps. Moreover, the evaluation framework and its operationalization in a modular evaluation tool provide practical instructions for the implementation and evaluation of PPI in health services research in Germany.

研究中的患者和公众参与（PPI）是一个在国际上迅速发展的研究领域，最近在德国也是如此。随着研究资助者和科学期刊越来越多地鼓励PPI，实施也在加速。到目前为止，关于结果和影响的证据很薄弱，主要是基于叙述性研究。有必要提供更有力的证据，以了解哪些生产者价格指数方法最有效，在何种情况下以及产生何种效果。为了科学地发展该研究领域，促进PPI在德国的实施，本项目的目标是1。树立评价理念2.开发模块化评估工具3.混合方法研究包括三个阶段。在第一阶段，将通过基于网络的调查以及通过与卫生服务研究领域的研究人员和患者进行焦点小组访谈，探讨PPI的有意义和成功的方面。然后在共同设计研讨会上讨论结果，研究人员，患者和其他利益相关者同意基于LOGIC模型的评估框架。在第二阶段，从国际上可用的工具，评价PPI的项目被演绎分配到同意的评价框架。根据第一阶段的重点小组，制定了进一步的项目。此外，将与研究人员和患者进行认知预测试和定性审查，以完善项目库并开发评估工具。在第三阶段，将在网上调查中试用包含研究人员和患者模块的模块评价工具。该项目的研究结果使其有可能与国际发展中的PPI研究领域联系起来，并解决相关的研究差距。此外，评价框架及其在一个模块化的评价工具的操作提供了实用的说明，在德国卫生服务研究的实施和评价PPI。