Demographic Patterns of Eugenic Sterilization in Three U.S. States: Mixed Methods Investigation of Reproductive Control of the 'Unfit'
Demographic Patterns of Eugenic Sterilization in Three U.S. States: Mixed Methods Investigation of Reproductive Control of the 'Unfit'
批准号:
10160210
负责人:
ALEXANDRA M STERN
金额:
$11.02万
依托单位国家:
美国
项目类别:
财政年份:
2018
资助国家:
美国
项目状态:
已结题
起止时间:
2018-09-21 至 2021-08-14
关键词:
AgeArchivesAttitudeBeliefBioethics ConsultantsCaliforniaCategoriesCensusesCodeConceptionsConsentConsent FormsDataData AnalysesData SetDiagnosisEnsureEpidemiologistEpidemiologyEthicsEthnic OriginEugenicsFamilyFamily history ofGenderGeneral PractitionersGeneticGenetic DeterminismGenomicsGeographic stateHome environmentHumanHuman GeneticsHumanitiesIndianaIndividualIntellectual functioning disabilityInterventionInvestigationIowaKnowledgeLatinaLawsLegalLinkMethodologyMethodsNationalitiesNormalcyNorth CarolinaParentsPatientsPatternPersonsPhasePlayPoliciesPopulationProcessPsychiatric DiagnosisQualitative ResearchRaceRecording of previous eventsRecordsReportingReproductionReproductive HealthSex BehaviorSpecialistState HospitalsStereotypingSterilizationTimeUnited StatesVariantWomanWorkbasedeprivationdesigndisabilitydisorder preventionethical legal social implicationexperiencegenetic discriminationgenetic variantgirlshuman genomicsinnovationinterdisciplinary collaborationinterestlarge datasetspopulation basedprogramsracial and ethnicreproductiveresidencesocial
中文摘要
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英文摘要
PROJECT SUMMARY/ABSTRACT
From the passage of the first US state sterilization law in Indiana in 1907 until the 1970s, approximately 60,000
people were sterilized based on eugenic criteria designed to limit the reproduction of the “unfit”. Our team has
produced original empirical historical analyses of this practice, using a dataset we created of over 20,000
sterilization approvals from California. Our interdisciplinary collaboration between historians and
epidemiologists has generated methodological innovations and revealed important findings, including the
disproportionate sterilization of Latina/o Californians, especially young Latinas, and the disparate
implementation of consent processes across different demographic groups and different state hospitals. We
propose to extend our analysis to North Carolina and Iowa, formalizing a method to rigorously integrate our
quantitative epidemiologic approach with qualitative, historical analysis.
To capture a more multiregional and layered understanding of eugenic sterilization in the United States in the
20th century, we propose to replicate and extend our analyses of the California eugenics records to include
quantitative and qualitative data on 7,068 sterilization petitions from North Carolina between 1929 and 1974,
and 2,185 sterilization applications from Iowa between 1934 and 1974. Ultimately our dataset will contain
nearly 30,000 sterilization petitions, approximately one half of all eugenic sterilizations reported in the United
States in the 20th century.
We will produce, harmonize and analyze de-identified eugenic sterilization datasets for each state, including
data on the gender, age, ethnicity, nationality, diagnosis, institutional home, and family history of patients
considered for sterilization. We will analyze eugenic sterilization datasets in conjunction with individual-level
Census microdata, estimating and comparing population-based sterilization rates. We will deepen the mixed
methods approaches developed in our R21 analysis, integrating quantitative findings with in-depth qualitative
analysis of notes on patient forms to generate a richer understanding of the experiences of 30,000 people
sterilized during the eugenics era.
This study is relevant to contemporary ethical, legal, and social issues in human genomics, as it will provide
new scholarly knowledge about the ways in which a particular variant of genetic determinism resulted in the
widespread state-mandated deprivation of reproductive capacity. We will examine how eugenic stereotypes
about race and ethnicity, gender, sexual behavior, and intellectual disability influenced three states'
interventions into the reproductive lives of institutionalized and vulnerable persons. Our findings can serve as a
backdrop for contemporary conversations about the extent to which conceptions of normality, disability, and
genetic stigmatization can insinuate themselves into the norms of disease prevention and human
improvement.
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Demographic Patterns of Eugenic Sterilization in Three U.S. States: Mixed Methods Investigation of Reproductive Control of the 'Unfit'
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批准号:9789924
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项目类别:
-
资助金额:$38.31万
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财政年份:2018
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负责人:ALEXANDRA M STERN
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依托单位:
Demographic Patterns of Eugenic Sterilization in California
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批准号:9013639
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项目类别:
-
资助金额:$18.16万
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财政年份:2016
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负责人:ALEXANDRA M STERN
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依托单位:
From Coercion to Choice? The History & Future of Genetic
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批准号:7009995
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项目类别:
-
资助金额:$6.36万
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财政年份:2005
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负责人:ALEXANDRA M STERN
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依托单位:
The History & Future of Genetic Counseling in the U.S.
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批准号:6845903
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项目类别:
-
资助金额:$6.25万
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财政年份:2005
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负责人:ALEXANDRA M STERN
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依托单位:
海外基金