Building Trust to Enhance Diversity in Aging Research

建立信任以增强衰老研究的多样性

• 批准号: 10165453
• 负责人: JAY MAGAZINER
• 金额: $ 68.23万
• 依托单位: UNIVERSITY OF MARYLAND BALTIMORE
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-15 至 2023-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10165453
• 关键词: Academic Medical Centers; Address; Adult; African American; Age; Aging; Baltimore; Baptist Church; Behavior; Capsicum; Cities; Clinical Research; Clinical Trials; Communities; Community Health; Companions; Complex; Development; Disease; Elderly; Enrollment; Ensure; Ethics; Extramural Activities; Fostering; Funding; Future; Goals; Grant; Health; Health Personnel; Health Status; Health system; Healthcare; Hearing; Human; Impairment; Infrastructure; Infrastructure Activities; Institution; Investments; Journals; Learning; Lebanon; Life; Maryland; Medical Research; Medical center; Methods; Monoclonal Antibody R24; Nature; Participant; Personal Satisfaction; Physical Function; Planning Theory; Population; Population Heterogeneity; Principal Investigator; Process; Race; Registries; Research; Research Methodology; Research Personnel; Research Support; Resources; Scientist; Services; Socioeconomic Status; Testing; Translational Research; Trust; U.S. Department of Housing and Urban Development; Underrepresented Populations; United States Agency for Healthcare Research and Quality; United States Dept. of Health and Human Services; Universities; Vision; Work; age related; community engaged research; community organizations; cost; cultural competence; design; effectiveness evaluation; evidence base; experience; health difference; improved; member; patient engagement; patient oriented; primary outcome; programs; recruit; research study; study population; treatment program; trustworthiness; willingness

PROJECT SUMMARY/ABSTRACT Aging Research focuses on aging processes, age-related diseases, and special problems and needs of older adults. Aging Research helps us to understand the nature of aging and how best to extend the healthy, active years of life. Greater diversity among the populations engaged in Aging Research studies is essential in order to understand the complex relationships among health status and age, race, physical functioning (and physical impairment), culture, and socioeconomic status. The proposed project will foster a community-academic Aging Research collaborative that promotes trust and develops recruitment and retention methods to increase the diversity of older adult participants in clinical studies of aging Achieving greater diversity in clinical research study populations involving older adults is desirable and feasible, yet comes at a cost. Our proposed study of recruitment methods will help answer the question, “Can we identify evidenced-based recruitment methods that are both effective (successfully recruit populations underrepresented in clinical research) and efficient (provide a reasonable return on investment) in recruiting and retaining underrepresented populations in clinical studies of aging?” We will accomplish this by building the infrastructure necessary to support methodological research in partnership with community organizations with whom we have worked on prior multiyear federal grants, including an R24 from the U.S. Department of Health and Human Services' Agency for Healthcare Research and Quality (AHRQ). The project aims are: Aim 1: Foster a community-academic Aging Research collaborative that promotes trust and develops recruitment and retention methods to increase the diversity of older adult participants in clinical studies of aging Aim 2: Engage diverse older adults, their community-based health care providers, and investigators in a manner that facilitates bi-directional learning for future Aging Research studies Aim 2a: Move older adults along the willingness to participate in research continuum Aim 2b: Enhance the cultural competence of investigators studying aging and by doing so promote trustworthiness of Aging Research studies by community members Aim 3: Guided by co-developed ethical principles, facilitate the enrollment of three difficult-to- recruit subpopulations: older African Americans, older adults with impairments (hearing, vision, mobility), and those who are homebound into a Registry

项目总结/摘要 老龄化研究的重点是衰老过程，与年龄有关的疾病，和特殊问题， 老年人的需要。衰老研究帮助我们了解衰老的本质， 来延长健康活跃的寿命参与人口的多样性增加 衰老研究是必不可少的，以了解复杂的关系， 健康状况和年龄、种族、身体功能（和身体损伤）、文化，以及 社会经济地位。拟议的项目将促进社区学术老龄化研究 促进信任并制定招聘和保留方法，以增加 老年人参与衰老临床研究的多样性 在涉及老年人的临床研究人群中实现更大的多样性， 这是可取的和可行的，但需要付出代价。我们建议的招聘方法研究将 帮助回答这个问题，“我们能否确定基于证据的招募方法， 有效（成功招募临床研究中代表性不足的人群）和高效 （提供合理的投资回报）征聘和留住任职人数偏低的人 在老龄化的临床研究中的人口？”我们将通过建设基础设施来实现这一目标 有必要与社区组织合作，支持方法研究， 我们曾在之前的多年联邦赠款中工作过，包括来自美国的R24。 美国卫生与公众服务部医疗保健研究和质量局 （AHRQ）。该项目的目标是： 目标1：促进社区学术老龄化研究合作，促进信任， 制定招募和保留方法，以增加老年参与者的多样性 在衰老的临床研究中 目标2：吸引不同的老年人，他们的社区卫生保健提供者， 研究人员以促进未来老龄化研究双向学习的方式 目标2a：推动老年人沿着参与研究连续体的意愿 目标2b：提高研究老龄化问题的研究人员的文化能力， 促进社区成员对老龄化研究的信任 目标3：以共同制定的伦理原则为指导，促进三个难以接受的 招募亚群：老年非裔美国人，老年人与障碍（听力，视力， 流动性）和那些谁是回家到登记处