Building Trust to Enhance Diversity in Aging Research

建立信任以增强衰老研究的多样性

• 批准号: 10120337
• 负责人: JAY MAGAZINER
• 金额: $ 38.35万
• 依托单位: UNIVERSITY OF MARYLAND BALTIMORE
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-15 至 2022-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10120337
• 关键词: Address; Administrative Supplement; Adult; African American; Age; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; Award; Baltimore; Caregivers; Cessation of life; Clinical; Clinical Research; Clinical Trials; Cognitive; Collaborations; Communities; Community Outreach; Development; Diagnosis; Education; Elderly; Enrollment; Exercise; Extramural Activities; Family Caregiver; Funding; Future; Goals; Grant; Health; Health Status; Hearing; Impaired cognition; Impairment; Individual; Infrastructure; Interview; Investments; Journals; Maryland; Methods; Monoclonal Antibody R24; Parents; Participant; Personal Satisfaction; Population Heterogeneity; Process; Registries; Reporting; Research; Research Personnel; Research Support; Resources; Risk Factors; Scientist; Sensory; Structure; Testing; Trust; Underrepresented Populations; United States National Institutes of Health; Universities; Vision; Work; design; effectiveness evaluation; evidence base; health difference; improved; member; mild cognitive impairment; parent project; patient oriented; prevent; primary outcome; programs; recruit; research study; response; success; treatment duration; treatment program

ADRD SUPPLEMENT TO “BUILDING TRUST TO ENHANCE DIVERSITY IN AGING RESEARCH” This supplement proposal seeks to extend the scope of our collaborative program, “Building Trust to Enhance Diversity in Aging Research” (R24 AG063728), to develop a registry reflecting a diverse population of individuals for future participation in clinical aging studies by adding those with cognitive problems and Alzheimer’s disease and related dementias (ADRD) who were not included in our parent project. In the proposed ADRD Supplement we attempt to understand the special concerns of those with ADRD and their caregivers as a first step in enrolling them into the developing registry. ADRD are responsible for an increasing proportion of deaths among older adults; display racial and other disparities across the spectrum of risk factors, diagnosis, and treatment; and are burdensome for families and caregivers. Much more work needs to be done to understand risk factors, mechanisms, and the course of ADRD progression in underrepresented populations. Through structured interviews with individuals with mild cognitive impairment (MCI) or mild ADRD, and their caregivers if applicable, we will pilot test and adapt our registry recruitment strategies selection process. We will also identify barriers to participation in research studies among individuals with MCI or mild ADRD and their caregivers. We will also compare and contrast these barriers with those reported by participants of the parent study without cognitive impairments. The overarching goal of this supplement is to extend, using similar methods, the ongoing parent study’s work in engaging a diverse population of older adults to voluntarily join our registry to so that it will encompass those with cognitive impairments, including mild ADRD, and their caregivers thereby enhancing the value of the registry to investigators conducting aging research.

“建立信任，促进老龄化研究的多样性”的补充。