COVID-19, Social Distancing and Spouse/Partner Caregiving for those with Alzheimer's Disease
COVID-19, Social Distancing and Spouse/Partner Caregiving for those with Alzheimer's Disease
批准号:
10192917
负责人:
Toni Calasanti
金额:
$21.44万
依托单位国家:
美国
项目类别:
财政年份:
2019
资助国家:
美国
项目状态:
已结题
起止时间:
2019-02-01 至 2022-01-31
关键词:
AIDS/HIV problemAdministrative SupplementAdultAffectAlzheimer&aposs DiseaseAlzheimer&aposs disease caregiverAlzheimer&aposs disease related dementiaAreaBehavioralCOVID-19COVID-19 pandemicCaregiver BurdenCaregiver supportCaregiversCaringCognitiveCommunitiesContainmentCouplesDistressElderlyExhibitsFoundationsFundingFutureGaysGenderGender IdentityHealthHeterosexualsHome environmentHusbandIndividualInterventionInterviewKnowledgeLeadLesbianLife Cycle StagesMeasuresMediationMemoryMental HealthOutcomeParentsPatternPerceptionPolicy MakerQuality of lifeResearchResourcesRespondentSame-sexSex OrientationShapesShelter facilitySocial DistanceSocial supportSourceSpouse CaregiverSpousesStructureTimeVulnerable PopulationsWifeWorkbasecare recipientscaregivingcombateffective interventionexperiencehuman old age (65+)informal caregivinginformal supportmenpandemic diseaseparent grantphysical conditioningpreventresponseskills
中文摘要
项目摘要
这一行政副刊扩展了对同性和异性恋老年人的定性研究
照顾患有阿尔茨海默病和相关痴呆症的配偶/伴侣的成年人。这个
最初的研究试图找出照顾者如何利用现有的性别剧目-集合
在生命过程中学到的技能和资源,肯定了在
与性别分工的关系--在履行其护理工作方面。由此产生的照顾
方法影响这些照顾者发现有问题的特定护理工作领域,
他们可能如何应对这些挑战,以及这些战略的帮助程度
护理员有效地完成了他们的工作。这项研究问及性取向如何塑造性别
鉴于男女同性恋者之间的分工必须协商,
并考察了这是如何塑造照看方法和经验的。
新冠肺炎的出现和社交距离等遏制措施已经
创造了一种情况,所有AD照顾者都必须与之抗争,无论性别或性别
然而,他们这样做的方式可能会显示出一些差异。这
行政副刊建立在家长研究的基础上,并试图探索
新冠肺炎和跨越时间和照看群体的社交距离。建议数
补充研究将包括重新采访父母研究中之前的受访者,以
找出照顾者发现的挑战方面的相似和不同之处,以及
他们用来应对这些困难的策略。了解新冠肺炎和
社会距离塑造这些照看经历将提供急需的信息
LG和异性配偶/伴侣进行的照顾,同时也揭示了如何
性别和性取向塑造了照顾者认为具有挑战性的策略
他们用来应对这些问题,以及他们可以利用的资源。获得的知识
这项研究将对寻求以下目标的政策制定者和实践者产生影响
制定有效的干预措施,支持照顾者,防止身体和心理上的负面影响
健康结果。
英文摘要
Project Summary
This administrative supplement extends a qualitative study of same-sex and heterosexual older
adults who care for their spouses/partners with Alzheimer's disease and related dementias. The
original research seeks to pinpoint how caregivers draw upon existing gender repertoires – sets
of skills and resources learned over the life course that affirm gender identities formed in
relation to the gender division of labor—in performing their care work. The resulting caregiving
approaches influence the particular areas of care work that these caregivers find problematic,
the ways they might respond to these challenges, and the extent to which such strategies help
caregivers effectively perform their work. This study asks how sexual orientation shapes gender
repertories, given that the division of labor among gay and lesbian couples must be negotiated,
and examines how this shapes caregiving approaches and experiences.
The emergence of COVID-19 and such containment measures as social distancing have
created a situation with which all AD caregivers must contend, regardless of gender or sexual
orientation; however, the ways in which they do so likely exhibit some differences. This
administrative supplement builds upon the parent study and seeks to explore the impact of
COVID-19 and social distancing across time and caregiving groups. The proposed
supplemental study will involve re-interviewing previous respondents from the parent study to
identify similarities and differences in terms of what caregivers find challenging, and the
strategies they use to deal with these difficulties. Understanding the ways that COVID-19 and
social distancing shape these caregiving experiences will provide much needed information on
caregiving performed by LG and heterosexual spouses/partners while also revealing how
gender and sexual orientation shape what caregivers perceive to be challenging, the strategies
they use to cope with these, and the resources they have available to them. Knowledge gained
from the study will have implications for both policy-makers and practitioners who seek to
develop effective interventions to support caregivers and prevent negative physical and mental
health outcomes.
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