COVID-19, Social Distancing and Spouse/Partner Caregiving for those with Alzheimer's Disease

COVID-19、阿尔茨海默病患者的社交距离和配偶/伴侣护理

• 批准号: 10192917
• 负责人: Toni Calasanti
• 金额: $ 21.44万
• 依托单位: VIRGINIA POLYTECHNIC INST AND ST UNIV
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-02-01 至 2022-01-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10192917
• 关键词: AIDS/HIV problem; Administrative Supplement; Adult; Affect; Alzheimer' s Disease; Alzheimer' s disease caregiver; Alzheimer' s disease related dementia; Area; Behavioral; COVID-19; COVID-19 pandemic; Caregiver Burden; Caregiver support; Caregivers; Caring; Cognitive; Communities; Containment; Couples; Distress; Elderly; Exhibits; Foundations; Funding; Future; Gays; Gender; Gender Identity; Health; Heterosexuals; Home environment; Husband; Individual; Intervention; Interview; Knowledge; Lead; Lesbian; Life Cycle Stages; Measures; Mediation; Memory; Mental Health; Outcome; Parents; Pattern; Perception; Policy Maker; Quality of life; Research; Resources; Respondent; Same-sex; Sex Orientation; Shapes; Shelter facility; Social Distance; Social support; Source; Spouse Caregiver; Spouses; Structure; Time; Vulnerable Populations; Wife; Work; base; care recipients; caregiving; combat; effective intervention; experience; human old age (65+); informal caregiving; informal support; men; pandemic disease; parent grant; physical conditioning; prevent; response; skills

Project Summary This administrative supplement extends a qualitative study of same-sex and heterosexual older adults who care for their spouses/partners with Alzheimer's disease and related dementias. The original research seeks to pinpoint how caregivers draw upon existing gender repertoires – sets of skills and resources learned over the life course that affirm gender identities formed in relation to the gender division of labor—in performing their care work. The resulting caregiving approaches influence the particular areas of care work that these caregivers find problematic, the ways they might respond to these challenges, and the extent to which such strategies help caregivers effectively perform their work. This study asks how sexual orientation shapes gender repertories, given that the division of labor among gay and lesbian couples must be negotiated, and examines how this shapes caregiving approaches and experiences. The emergence of COVID-19 and such containment measures as social distancing have created a situation with which all AD caregivers must contend, regardless of gender or sexual orientation; however, the ways in which they do so likely exhibit some differences. This administrative supplement builds upon the parent study and seeks to explore the impact of COVID-19 and social distancing across time and caregiving groups. The proposed supplemental study will involve re-interviewing previous respondents from the parent study to identify similarities and differences in terms of what caregivers find challenging, and the strategies they use to deal with these difficulties. Understanding the ways that COVID-19 and social distancing shape these caregiving experiences will provide much needed information on caregiving performed by LG and heterosexual spouses/partners while also revealing how gender and sexual orientation shape what caregivers perceive to be challenging, the strategies they use to cope with these, and the resources they have available to them. Knowledge gained from the study will have implications for both policy-makers and practitioners who seek to develop effective interventions to support caregivers and prevent negative physical and mental health outcomes.

项目总结