1Florida Alzheimer's Disease Research Center Outreach, Recruitment and Engagement (ORE) Core

1佛罗里达阿尔茨海默病研究中心外展、招募和参与 (ORE) 核心

• 批准号: 10190776
• 负责人: Rosie E Curiel Cid
• 金额: $ 8.53万
• 依托单位: UNIVERSITY OF FLORIDA
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-06-15 至 2025-04-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10190776
• 关键词: Address; African American; Alzheimer disease detection; Alzheimer' s Disease; Alzheimer' s disease related dementia; Applied Research; Area; Autopsy; Brain; Clinic; Clinical; Clinical Research; Clinical Trials; Collaborations; Communication; Communities; County; Cultural Diversity; Data; Dementia; Development; Disease; Early Diagnosis; Education; Education and Outreach; Educational Materials; Elderly; Enrollment; Ensure; Evaluation; Feedback; Florida; Follow-Up Studies; Fostering; Goals; Healthcare; Hispanic Americans; Hispanics; Individual; Knowledge; Language; Lead; Literature; Magnetic Resonance Imaging; Measures; Medical center; Memory Disorders; Methods; Minority; Mission; Monitor; Neuropsychology; Not Hispanic or Latino; PET/CT scan; Participant; Persons; Phase; Population; Population Heterogeneity; Postdoctoral Fellow; Prevalence; Registries; Research; Research Personnel; Research Project Grants; Research Training; Resources; Risk Factors; Scanning; Scientist; Site; Time; Training; Training Activity; Training Support; Underrepresented Minority; Underserved Population; Universities; Update; Work; aging population; base; cohort; community engagement; community partnership; data management; dementia risk; disorder risk; education research; empowered; ethnic diversity; ethnic minority population; experience; faculty research; follow-up; genetic analysis; interest; medical schools; minority communities; neuroimaging; neuropathology; next generation; outreach; pre-clinical; prevent; programs; racial diversity; racial minority; recruit; retention rate; success; tool; underserved minority

The state of Florida’s high ethnic and racial diversity provides a unique platform to address an array of scientific and clinical questions to refine our current understanding of how AD+ADRD present and progress among the nation’s diverse cultural groups. Moreover, early detection has become a global priority, given that identifying individuals at-risk for disease during the pre-symptomatic phases may yield the greatest efficacy in emerging treatments in AD+ADRD clinical trials. Thus, the 1Florida Alzheimer’s Disease Research Center has placed a special emphasis on recruiting diverse individuals during the preclinical (preMCI) or prodromal (early MCI) phases, which is of significant value for longitudinal follow up studies. The 1Florida ADRC addresses these major national priorities, represents our demographic landscape, and leverages the scientific expertise of our investigators. The 1Florida ADRC ORE Core’s objectives are to actively facilitate community and professional outreach and education programs so that our Clinical and Neuropathology Cores and affiliated researchers can enroll individuals who are interested in helping develop ways to better assess, treat and prevent AD+ADRD, particularly people from underserved and underrepresented minority communities. We propose to achieve this by i) assembling a racially and ethnically diverse team, ii) further developing, strengthening, and empowering our academic-community partners, iii) developing and implementing culturally appropriate and dual language outreach and educational materials, iv) broadening our communications with stakeholders in a more “live” manner through in-person reciprocal dialogue, and v) serve as cross-cultural experts to support the training of emerging clinician scientists and other professionals through the REC. In the current application, we are strengthening and expanding our partnerships with a focus on more actively engaging stakeholders from minority communities to be involved in the “1Florida ADRC Ambassadors Council”. The feedback of our Ambassadors will allow us to implement pragmatic and effective methods for community engagement in the Hispanic and AA communities in a manner that resonates with our diverse cultural groups. Ultimately, the success of our strategies and programs will be reflected in recruitment and retention rates, especially in the specifically targeted diverse populations. The ORE Core will work closely with the Data Management Core and Clinical Core, to deploy tools to capture data that will evaluate all activities. Our success will also be measured by maintaining an engaged and satisfied cadre of Ambassadors that are representatives of our diverse community, as well as a notable expansion of sustained platforms for outreach and education throughout the state. Importantly, the ORE team has significant cross-cultural expertise that will be valuable for providing training to RE component to ensure that our knowledge about effective practices to engage, assess and treat underrepresented minorities is made available to emerging clinician scientists and other ADRC teams that are working with similar populations.

佛罗里达州高度的种族和种族多样性为解决一系列科学问题提供了独特的平台 和临床问题，以完善我们目前对AD+ADRD如何存在和进展的理解 国家的多元文化群体。此外，早期发现已成为全球优先事项，因为识别 在症状前阶段有患病风险的个体可能会在新出现的疾病中产生最大的疗效 AD+ADRD临床试验中的治疗。因此，1佛罗里达州阿尔茨海默病研究中心已经将一项 特别强调在临床前(MCI前期)或前驱(MCI早期)期间招募不同的个体 阶段，这对纵向随访研究具有重要价值。佛罗里达州ADRC致力于解决以下主要问题 国家优先事项，代表我们的人口格局，并利用我们的科学专业知识 调查人员。1佛罗里达ADRC ORE核心的目标是积极促进社区和专业 外展和教育计划，以便我们的临床和神经病理学核心和附属研究人员能够 招募有兴趣帮助开发更好地评估、治疗和预防AD+ADRD的方法的个人， 特别是来自服务不足和代表性不足的少数族裔社区的人。我们建议实现这一目标 通过一)组建一个种族和民族多样化的团队，二)进一步发展、加强和赋权 我们的学术界合作伙伴，三)开发和实施适合文化的双语 外联和教育材料，四)扩大我们与利益攸关方的沟通，使之更加“活生生” 通过面对面的互惠对话的方式，以及v)作为跨文化专家，支持培训 通过REC的新兴临床医生科学家和其他专业人员。在当前应用程序中，我们是 加强和扩大我们的伙伴关系，重点是更积极地吸引少数族裔利益相关者参与 社区将参与“1佛罗里达州民主与发展中心大使理事会”。大使们的反馈 将使我们能够在西班牙裔和AA社区实施务实和有效的社区参与方法 以一种与我们不同的文化群体产生共鸣的方式，在社区中发挥作用。最终，我们的成功 战略和方案将反映在招聘和保留率中，特别是在有明确目标的 不同的人群。ORE核心将与数据管理核心和临床核心密切合作，以 部署工具以捕获将评估所有活动的数据。我们的成功也将通过保持 一支积极参与并令人满意的大使队伍，他们是我们不同社区的代表，以及 在全州范围内持续扩大外联和教育平台的显著扩大。重要的是， ORE团队拥有丰富的跨文化专业知识，这对于为RE组件提供培训将是非常有价值的 确保我们对参与、评估和治疗代表性不足的少数群体的有效做法的了解是 提供给新兴临床医生科学家和其他与类似人群合作的ADRC团队。