1Florida Alzheimer's Disease Research Center Outreach, Recruitment and Engagement (ORE) Core

1佛罗里达阿尔茨海默病研究中心外展、招募和参与 (ORE) 核心

• 批准号: 10413195
• 负责人: Rosie E Curiel Cid
• 金额: $ 34.25万
• 依托单位: UNIVERSITY OF FLORIDA
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-06-15 至 2025-04-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10413195
• 关键词: Address; African American; African American population; Alzheimer disease detection; Alzheimer' s Disease; Alzheimer' s disease related dementia; Applied Research; Area; Autopsy; Black race; Brain; Clinic; Clinical; Clinical Research; Clinical Trials; Collaborations; Communication; Communities; County; Cultural Diversity; Data; Dementia; Development; Disease; Early Diagnosis; Education; Education and Outreach; Educational Materials; Elderly; Enrollment; Ensure; Evaluation; Feedback; Florida; Follow-Up Studies; Fostering; Goals; Healthcare; Hispanic; Hispanic Americans; Hispanic Populations; Individual; Knowledge; Language; Lead; Literature; Magnetic Resonance Imaging; Measures; Medical center; Memory Disorders; Methods; Minority; Mission; Monitor; Neuropsychology; Not Hispanic or Latino; PET/CT scan; Participant; Persons; Phase; Population; Population Heterogeneity; Postdoctoral Fellow; Prevalence; Registries; Research; Research Personnel; Research Project Grants; Research Training; Resources; Risk Factors; Scanning; Scientist; Site; Time; Training; Training Activity; Training Support; Underrepresented Minority; Underserved Population; Universities; Update; Work; aging population; base; cohort; community engagement; community partnership; data management; dementia risk; disorder risk; education research; empowered; ethnic diversity; ethnic minority; experience; faculty research; follow-up; genetic analysis; interest; medical schools; minority communities; neuroimaging; neuropathology; next generation; outreach; pre-clinical; prevent; programs; racial diversity; racial minority; recruit; retention rate; success; tool; underserved minority

The state of Florida’s high ethnic and racial diversity provides a unique platform to address an array of scientific and clinical questions to refine our current understanding of how AD+ADRD present and progress among the nation’s diverse cultural groups. Moreover, early detection has become a global priority, given that identifying individuals at-risk for disease during the pre-symptomatic phases may yield the greatest efficacy in emerging treatments in AD+ADRD clinical trials. Thus, the 1Florida Alzheimer’s Disease Research Center has placed a special emphasis on recruiting diverse individuals during the preclinical (preMCI) or prodromal (early MCI) phases, which is of significant value for longitudinal follow up studies. The 1Florida ADRC addresses these major national priorities, represents our demographic landscape, and leverages the scientific expertise of our investigators. The 1Florida ADRC ORE Core’s objectives are to actively facilitate community and professional outreach and education programs so that our Clinical and Neuropathology Cores and affiliated researchers can enroll individuals who are interested in helping develop ways to better assess, treat and prevent AD+ADRD, particularly people from underserved and underrepresented minority communities. We propose to achieve this by i) assembling a racially and ethnically diverse team, ii) further developing, strengthening, and empowering our academic-community partners, iii) developing and implementing culturally appropriate and dual language outreach and educational materials, iv) broadening our communications with stakeholders in a more “live” manner through in-person reciprocal dialogue, and v) serve as cross-cultural experts to support the training of emerging clinician scientists and other professionals through the REC. In the current application, we are strengthening and expanding our partnerships with a focus on more actively engaging stakeholders from minority communities to be involved in the “1Florida ADRC Ambassadors Council”. The feedback of our Ambassadors will allow us to implement pragmatic and effective methods for community engagement in the Hispanic and AA communities in a manner that resonates with our diverse cultural groups. Ultimately, the success of our strategies and programs will be reflected in recruitment and retention rates, especially in the specifically targeted diverse populations. The ORE Core will work closely with the Data Management Core and Clinical Core, to deploy tools to capture data that will evaluate all activities. Our success will also be measured by maintaining an engaged and satisfied cadre of Ambassadors that are representatives of our diverse community, as well as a notable expansion of sustained platforms for outreach and education throughout the state. Importantly, the ORE team has significant cross-cultural expertise that will be valuable for providing training to RE component to ensure that our knowledge about effective practices to engage, assess and treat underrepresented minorities is made available to emerging clinician scientists and other ADRC teams that are working with similar populations.

佛罗里达州的高种族和种族多样性提供了一个独特的平台，可以解决一系列科学的平台 和临床问题，以完善我们当前对AD+ADRD的理解以及在 国家的潜水文化群体。此外，鉴于确定的早期检测已成为全球优先事项 在症状前疾病中，处于疾病的危险中可能会产生最大的效率 AD+ADRD临床试验中的治疗方法。那是1florida阿尔茨海默氏病研究中心 特别强调在临床前（PREMCI）或前驱（早期MCI）期间招募潜水员 阶段，这对于纵向后续研究具有重要价值。 1florida adrc解决了这些专业 国家优先事项，代表我们的人口格局，并利用我们的科学专业知识 调查人员。 1florida adrc Ore Core的目标是积极支持社区和专业 推广和教育计划，以便我们的临床和神经病理学核心以及会员研究人员可以 招募有兴趣帮助发展方法以更好地评估，治疗和预防AD+ADRD的个人， 特别是来自服务不足和代表性不足的少数民族社区的人。我们建议实现这一目标 通过i）组建一个大致和种族多元化的团队，ii）进一步发展，增强和授权 我们的学术社区合作伙伴，iii）开发和实施文化适当和双重语言 外展和教育材料，iv）在更“现场”中扩大与利益相关者的沟通 通过面对面的对话对话的方式，v）作为跨文化专家，以支持培训 新兴的临床科学家和其他专业人员通过REC。在当前的应用程序中，我们是 加强和扩大我们的伙伴关系，重点是使少数派利益相关者更积极地吸引利益相关者 社区参与“ 1florida ADRC大使委员会”。我们大使的反馈 我们将允许我们实施务实有效的方法，以在西班牙裔和AA中参与社区参与 社区的方式与我们多样化的文化群体产生共鸣。最终，我们的成功 策略和计划将反映在招聘和保留率中，尤其是针对特定针对的 多样化的人口。矿石核心将与数据管理核心和临床核心紧密合作，以 部署工具来捕获将评估所有活动的数据。我们的成功也将通过维护来衡量 大使的参与和满意的干部是我们潜水员社区的代表，以及 全州持续的外展和教育平台的显着扩展。重要的是， 矿石团队具有重要的跨文化专业知识，这对于提供培训以重新组成将是有价值的 确保我们对参与，评估和治疗代表性不足的少数民族的有效实践的了解是 可用于与类似人群合作的新兴临床科学家和其他ADRC团队。