1Florida Alzheimer's Disease Research Center Outreach, Recruitment and Engagement (ORE) Core

1佛罗里达阿尔茨海默病研究中心外展、招募和参与 (ORE) 核心

• 批准号: 10663239
• 负责人: Rosie E Curiel Cid
• 金额: $ 22.21万
• 依托单位: UNIVERSITY OF FLORIDA
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-06-15 至 2025-04-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10663239
• 关键词: Address; African American; African American population; Agreement; Alzheimer disease detection; Alzheimer' s Disease; Alzheimer' s disease related dementia; Applied Research; Area; Autopsy; Black race; Brain; Clinic; Clinical; Clinical Research; Clinical Trials; Collaborations; Communication; Communities; County; Data; Dementia; Development; Disease; Disparity; Early Diagnosis; Education; Education and Outreach; Educational Materials; Elderly; Enrollment; Evaluation; Faculty; Feedback; Florida; Follow-Up Studies; Fostering; Goals; Healthcare; Hispanic; Hispanic Americans; Hispanic Populations; Individual; Knowledge; Language; Literature; Magnetic Resonance Imaging; Measures; Medical center; Memory Disorders; Methods; Minority; Mission; Monitor; Neuropsychology; Not Hispanic or Latino; PET/CT scan; Participant; Persons; Phase; Population; Population Heterogeneity; Postdoctoral Fellow; Prevalence; Registries; Research; Research Personnel; Research Project Grants; Resources; Risk Factors; Scanning; Scientist; Site; Training; Training Activity; Training Support; Underrepresented Minority; Underserved Population; Universities; Update; Work; aging population; clinical training; cohort; community engagement; community organizations; community partnership; data management; dementia risk; disorder risk; education research; empowerment; ethnic diversity; ethnic minority; experience; follow-up; genetic analysis; interest; medical schools; minority communities; neuroimaging; neuropathology; next generation; outreach; pre-clinical; prevent; programs; racial diversity; racial minority; recruit; recruitment science; retention rate; success; tool; underserved minority

The state of Florida’s high ethnic and racial diversity provides a unique platform to address an array of scientific and clinical questions to refine our current understanding of how AD+ADRD present and progress among the nation’s diverse cultural groups. Moreover, early detection has become a global priority, given that identifying individuals at-risk for disease during the pre-symptomatic phases may yield the greatest efficacy in emerging treatments in AD+ADRD clinical trials. Thus, the 1Florida Alzheimer’s Disease Research Center has placed a special emphasis on recruiting diverse individuals during the preclinical (preMCI) or prodromal (early MCI) phases, which is of significant value for longitudinal follow up studies. The 1Florida ADRC addresses these major national priorities, represents our demographic landscape, and leverages the scientific expertise of our investigators. The 1Florida ADRC ORE Core’s objectives are to actively facilitate community and professional outreach and education programs so that our Clinical and Neuropathology Cores and affiliated researchers can enroll individuals who are interested in helping develop ways to better assess, treat and prevent AD+ADRD, particularly people from underserved and underrepresented minority communities. We propose to achieve this by i) assembling a racially and ethnically diverse team, ii) further developing, strengthening, and empowering our academic-community partners, iii) developing and implementing culturally appropriate and dual language outreach and educational materials, iv) broadening our communications with stakeholders in a more “live” manner through in-person reciprocal dialogue, and v) serve as cross-cultural experts to support the training of emerging clinician scientists and other professionals through the REC. In the current application, we are strengthening and expanding our partnerships with a focus on more actively engaging stakeholders from minority communities to be involved in the “1Florida ADRC Ambassadors Council”. The feedback of our Ambassadors will allow us to implement pragmatic and effective methods for community engagement in the Hispanic and AA communities in a manner that resonates with our diverse cultural groups. Ultimately, the success of our strategies and programs will be reflected in recruitment and retention rates, especially in the specifically targeted diverse populations. The ORE Core will work closely with the Data Management Core and Clinical Core, to deploy tools to capture data that will evaluate all activities. Our success will also be measured by maintaining an engaged and satisfied cadre of Ambassadors that are representatives of our diverse community, as well as a notable expansion of sustained platforms for outreach and education throughout the state. Importantly, the ORE team has significant cross-cultural expertise that will be valuable for providing training to RE component to ensure that our knowledge about effective practices to engage, assess and treat underrepresented minorities is made available to emerging clinician scientists and other ADRC teams that are working with similar populations.

佛罗里达州的高度民族和种族多样性提供了一个独特的平台，以解决一系列的科学 和临床问题，以完善我们目前对AD+ADRD如何在 民族的多元文化。此外，早期发现已成为全球优先事项，因为 在症状前阶段有疾病风险的个体可能在出现症状时产生最大的疗效。 AD+ADRD临床试验中的治疗。因此，佛罗里达州阿尔茨海默病研究中心已经放置了一个 特别强调在临床前（preMCI）或前驱期（早期MCI）招募不同的个体 这对纵向随访研究具有重要价值。佛罗里达州ADRC解决这些主要问题 国家优先事项，代表我们的人口景观，并利用我们的科学专业知识， investigators.佛罗里达州ADRC ORE核心的目标是积极促进社区和专业人士 外展和教育计划，使我们的临床和神经病理学核心和附属研究人员可以 招募有兴趣帮助开发更好评估、治疗和预防AD+ADRD方法的个人， 特别是来自服务不足和代表性不足的少数族裔社区的人。我们建议实现这一目标 通过i）组建一个种族和民族多元化的团队，ii）进一步发展，加强和授权 我们的学术社区合作伙伴，iii）制定和实施文化上适当的双语 外展和教育材料，iv）以更“生动”的方式扩大我们与利益攸关方的沟通 通过面对面的互惠对话方式，以及v）作为跨文化专家支持培训 新兴的临床科学家和其他专业人员通过REC。在当前的应用程序中，我们是 加强和扩大我们的伙伴关系，重点是更积极地与少数群体利益攸关方接触 社区参与“佛罗里达州ADRC大使理事会”。我们大使的反馈 将使我们能够实施务实和有效的方法，在西班牙裔和AA社区参与 以一种与我们不同文化群体产生共鸣的方式来建设社区。最终，我们的成功 战略和计划将反映在招聘和保留率，特别是在具体目标， 不同的人群。ORE核心将与数据管理核心和临床核心密切合作， 部署工具以获取将评估所有活动的数据。我们的成功也将通过保持 一个积极参与和满意的大使骨干，他们是我们多元化社区的代表，以及 在全州显著扩大了可持续的外联和教育平台。重要的是 ORE团队拥有重要的跨文化专业知识，这对于为RE组件提供培训非常有价值， 确保我们对参与、评估和对待代表性不足的少数群体的有效做法的了解， 提供给新兴的临床科学家和其他ADRC团队，他们正在与类似的人群合作。