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Peer Approaches to Lupus Self-Management (PALS)

狼疮自我管理的同伴方法 (PALS)

基本信息

批准号：
10197220
负责人：
Edith Marie Williams
金额：
$ 48.81万
依托单位：
MEDICAL UNIVERSITY OF SOUTH CAROLINA
依托单位国家：
美国
项目类别：
财政年份：
2018
资助国家：
美国
起止时间：
2018-09-26 至 2023-06-30
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10197220
关键词：
Address Affect African American Age Arthritis Caring Caucasians Chronic Chronic Disease Clinical Control Groups Data Diabetes Mellitus Disease Disease Outcome Goals HIV Health Health Care Costs Health education Intervention Kidney Diseases Laboratories Lead Lupus Measures Mediator of activation protein Mental Depression Mentors Mentorship Minority Modeling Morbidity - disease rate Outcome Patient Outcomes Assessments Patients Physicians Prevalence Psychological reinforcement Public Health Quality of life Quality-Adjusted Life Years Questionnaires Randomized Reporting Risk Role Self Management Social support Support Groups Systemic Lupus Erythematosus Testing Time Trust United States Woman Work chronic autoimmune disease community setting cost effective cost effective intervention cost effectiveness design disability disparity reduction effective intervention evidence base experience health related quality of life high risk population improved improved functioning improved outcome indexing innovation mortality pain reduction peer peer coaching programs randomized controlled design study population success

项目摘要

PROJECT SUMMARY/ABSTRACT The goal of the proposed project is to test an innovative, manualized peer mentorship program for African American women with systemic lupus erythematosus (SLE). The Peer Approaches to Lupus Self- management (PALS) study is designed to provide modeling and reinforcement by peers (mentors) to other African American women with SLE (mentees) to encourage them to engage in activities that promote disease self-management. This study builds on three decades of work conducted in the field of arthritis self- management but differs in that the intervention mode (peer mentoring), the disease (SLE), and the study population (African Americans) are unstudied or understudied. Through a randomized, controlled design, we will assess the efficacy and mechanism(s) of this intervention on self-management and health related quality of life (HRQOL). This program has three specific aims. The first aim seeks to determine the efficacy of a peer mentorship intervention in African American women with SLE on disease self-management and HRQOL. The second aim is to determine the impact of a peer mentorship intervention on patient-reported and clinical indicators of disease activity. The third aim is to determine the cost effectiveness of a peer mentorship intervention on disease self-management, disease activity, and HRQOL, in African American women with SLE. An exploratory aim will be to determine the role of mediators and moderators of a peer mentorship intervention on disease activity and HRQOL outcomes in African American women with SLE, to include disease self- management, depression, trust, and social support. The immediate goal of proposed work is to determine the efficacy of the program in a randomized design. The long-term goal is to disseminate this potentially cost- effective intervention in diverse clinical and community settings in an effort to improve disease outcomes in African American women with SLE and reduce morbidity and mortality in this high risk group. This effort could result in a model for other programs that aim to improve disease self-management, disease activity, and HRQOL in African American women suffering from chronic illness.

项目总结/文摘