American Samoa Indigenous Samoan Partnership to Initiate REsearch Excellence (INSPIRE) in Colorectal Cancer Health Literacy

项目摘要 据估计，65岁及以上的美国人中有580万人患有阿尔茨海默病及相关疾病 痴呆症(ADRD)相当于每10人中有1人患有痴呆症。大约42%的人口由 少数群体，如夏威夷原住民和其他太平洋岛民。根据2010年人口普查， 这一群体是该国增长最快的群体之一。然而，与之相关的ADRD很少 为这群人学习。已知的第一项确定ADRD在土著人群中可能流行的研究 美属萨摩亚人口使用受访者驱动的抽样招募了540名60岁及以上的成年人。 圣路易斯大学精神状况检查工具用于确定可能的痴呆症或 英语(n=175)和萨摩亚(n=365)语言均存在轻度神经认知障碍。这项研究的 组中，82.3%的萨摩亚人和84.0%的英语参与者在MNCD或 痴呆症的范围。众所周知，跨文化研究设计可以改善社区的接受度，并 在诺皮族人群中近似健康结果的有效性。在文化和语言上 适用于获取ADRD数据的工具对这些人群来说是有限的。 拟议的萨摩亚土著伙伴关系，以发起卓越研究(INSPIRE)补编 旨在：评估美属萨摩亚可能出现的ADRD，重点是萨摩亚人口 年龄在50岁及以上(n=208)，使用金伯利土著认知评估(KICA)工具。 工作将由美属萨摩亚社区癌症联盟领导，并提供专门的技术支持 在临床心理学家和医生的协助下，确保数据收集的有效性。付出的努力 应该增加可用于ADRD研究的数据数量，以及文化和 在萨摩亚人口中评估ADRD的适当工具。

Project Abstract An estimated 5.8 million Americans, age 65 and older are living with Alzheimer’s Disease and Related Dementias (ADRD) equating to 1 in every 10. Approximately 42% of the population are comprised of minority groups such as the Native Hawaiian and Other Pacific Islanders. According to the 2010 Census, this group was amongst the fastest growing in the country. However, there is a paucity of related ADRD studies for this group. The first known study to determine possible ADRD prevalence in the indigenous population of American Samoa used respondent driven sampling to recruit 540 adults age 60 and above. The Saint Louis University Mental Status examination tool was used to determine possible dementia or mild neurocognitive disorder in both the English (n=175) and Samoan (n=365) languages. Of the study group, 82.3% of the Samoan and 84.0% of the English participants scored in either the MNCD or dementia ranges. Cross cultural research designs have been known to improve community reception and effectiveness of approximating health outcomes in NHOPI populations. Culturally and linguistically adapted tools to capture ADRD data are limited for these populations. The proposed INdigenous Samoan Partnership to Initiate Research Excellence (INSPIRE) supplement aims to: assess for possible ADRD in American Samoa with an emphasis on the Samoan population age 50 and above (n=208) using the Kimberely Indigenous Cognitive Assessment (KICA) tool. Efforts will be led by the American Samoa Community Cancer Coalition and with dedicated technical assistance from a clinical psychologist and medical doctor to ensure data collection validity. The effort should increase the number of data available for ADRD research and the number of culturally and appropriate tools to assess ADRD in the Samoan population.