American Samoa Indigenous Samoan Partnership to Initiate REsearch Excellence (INSPIRE) in Colorectal Cancer Health Literacy

美属萨摩亚土著萨摩亚伙伴关系将启动结直肠癌健康素养卓越研究 (INSPIRE)

• 批准号: 10289538
• 负责人: Luana Scanlan
• 金额: $ 24.66万
• 依托单位: AMERICAN SAMOA COMMUNITY CANCER COALITIO
• 依托单位国家: 美国
• 财政年份: 2016
• 资助国家: 美国
• 起止时间: 2016-07-01 至 2023-01-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10289538
• 关键词: Adult; Age; Alzheimer' s disease related dementia; American; American Samoa; Area; Assessment tool; Censuses; Clinical; Collaborations; Colorectal Cancer; Communities; Country; Data; Data Collection; Dementia; Diagnosis; Effectiveness; Ensure; Equipment and supply inventories; Evaluation Research; Foundations; Health; High Prevalence; Indigenous; Island; Knowledge; Language; Linguistics; Malignant Neoplasms; Medical; Minority Groups; Native Hawaiian; Native-Born; Outcome; Pacific Island Americans; Parents; Participant; Population; Prevalence; Prevention; Procedures; Psychologist; Recording of previous events; Research; Research Design; Resources; Respondent; Saints; Samoan; Sampling; Science; Symptoms; Testing; Translating; Translations; Universities; cognitive testing; community based participatory research; comparative; health data; health disparity; health literacy; human old age (65+); improved; indigenous community; mental state; multimodality; neurocognitive disorder; online resource; programs; public health research; recruit; repository; social; social health determinants; tool

Project Abstract An estimated 5.8 million Americans, age 65 and older are living with Alzheimer’s Disease and Related Dementias (ADRD) equating to 1 in every 10. Approximately 42% of the population are comprised of minority groups such as the Native Hawaiian and Other Pacific Islanders. According to the 2010 Census, this group was amongst the fastest growing in the country. However, there is a paucity of related ADRD studies for this group. The first known study to determine possible ADRD prevalence in the indigenous population of American Samoa used respondent driven sampling to recruit 540 adults age 60 and above. The Saint Louis University Mental Status examination tool was used to determine possible dementia or mild neurocognitive disorder in both the English (n=175) and Samoan (n=365) languages. Of the study group, 82.3% of the Samoan and 84.0% of the English participants scored in either the MNCD or dementia ranges. Cross cultural research designs have been known to improve community reception and effectiveness of approximating health outcomes in NHOPI populations. Culturally and linguistically adapted tools to capture ADRD data are limited for these populations. The proposed INdigenous Samoan Partnership to Initiate Research Excellence (INSPIRE) supplement aims to: assess for possible ADRD in American Samoa with an emphasis on the Samoan population age 50 and above (n=208) using the Kimberely Indigenous Cognitive Assessment (KICA) tool. Efforts will be led by the American Samoa Community Cancer Coalition and with dedicated technical assistance from a clinical psychologist and medical doctor to ensure data collection validity. The effort should increase the number of data available for ADRD research and the number of culturally and appropriate tools to assess ADRD in the Samoan population.

项目摘要 据估计，580万年龄在65岁及以上的美国人患有阿尔茨海默病及其相关疾病。 痴呆症（ADRD）相当于每10人中有1人。大约42%的人口是由 夏威夷原住民和其他太平洋岛民等少数群体。根据2010年人口普查， 这一群体是该国增长最快的群体之一。然而，相关的ADRD缺乏 为这个群体学习。第一个已知的研究，以确定可能的ADRD患病率在土著 美属萨摩亚人口采用答卷人驱动抽样，招募540名60岁及以上的成年人。 圣刘易斯大学精神状态检查工具用于确定可能的痴呆或 英语（n=175）和萨摩亚语（n=365）轻度神经认知障碍。研究 组中，82.3%的萨摩亚人和84.0%的英语参与者在MNCD或 痴呆症的范围。众所周知，跨文化研究设计可以改善社区的接待， NHOPI人群中近似健康结果的有效性。文化和语言 适用于这些人群的ADRD数据采集工具有限。 拟议的INSPIRE萨摩亚启动卓越研究伙伴关系补充文件 目的是：评估美属萨摩亚可能发生的严重干旱和退化，重点是萨摩亚人口 年龄50岁及以上（n=208）使用金伯利土著认知评估（KICA）工具。 这项工作将由美属萨摩亚社区癌症联盟领导， 临床心理学家和医生的协助，以确保数据收集的有效性。的努力 应增加ADRD研究可用的数据数量， 评估萨摩亚人口中ADRD的适当工具。

项目成果

Research Capacity Strengthening in American Samoa: Fa'avaeina le Fa'atelega o le Tomai Sa'ili'ili i Amerika Samoa.

美属萨摩亚的研究能力加强：Faavaeina le Faatelega o le Tomai Sailiili i Amerika Samoa。

• DOI: 10.1093/bjsw/bcz160
• 发表时间: 2020
• 期刊: British journal of social work
• 影响因子: 1.8
• 作者: Tofaeono,Va'atausili;Ka'opua,LanaSueI;Sy,Angela;Terada,Tyran;Taliloa-VaiPurcell,Rachelann;Aoelua-Fanene,Salote;Tong,Katherine;Tofaeono,Victor;Unutoa-Mageo,Tofoipupu;Scanlan,Luana;Cassel,Kevin;Rosario,Adelaida
• 通讯作者: Rosario,Adelaida