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CONSENT-ASL Toolkit for Deaf and Hard of Hearing People

针对聋哑人和听力障碍人士的 CONSENT-ASL 工具包

基本信息

批准号：
10291517
负责人：
Poorna Kushalnagar
金额：
$ 14.25万
依托单位：
GALLAUDET UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2021
资助国家：
美国
起止时间：
2021-09-01 至 2024-08-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10291517
关键词：
Access to Information Adoption American Sign Language Anecdotes Bioethics Consultants Clinical Data Clinical Research Clinical Trials Communication Communities Consent Data Decision Making Doctor of Philosophy Eligibility Determination Focus Groups Funding Goals Health Health Personnel Health Promotion Healthcare Hearing Information Dissemination Information Resources Informed Consent Institution Institutional Review Boards Knowledge Language Leadership Linguistics Link Maintenance Oral Outcome Participant Patient-Centered Care Patients Personal Satisfaction Persons Population Principal Investigator Process Reach, Effectiveness, Adoption, Implementation, and Maintenance Reporting Research Research Personnel Research Support Resources Risk Site Strategic Planning Surveys Testing Training Underrepresented Populations Underserved Population United States National Institutes of Health Universities Work base deaf design disparity reduction dissemination strategy experience hard of hearing health disparity health equity health literacy hearing impairment high risk population improved improved outcome medically underserved member mobile application prospective public health relevance research study usability user centered design web site

项目摘要

There is a critical need for a user-centered, accessible informed consent toolkit. The purpose of this G08 application is to develop and deploy an accessible informed consent app- based toolkit to support two target audiences: 1) deaf patients who wish to participate in research studies and 2) clinical research coordinators (CRCs) and principal investigators (PIs) who do not have the resources to make their informed consent materials accessible to prospective participants who are deaf. This project is low-risk and high in impact because it builds on the leadership team’s research with the medically underserved Deaf community. Knowledge gained from the proposed activities will therefore have great potential to bring useful, usable resources to deaf signers and who wish to participate in research or clinical trials. Finally, the resulting resources will fill a gap prioritized in Goals 1&2 of NLM's Strategic Plan Goals because the proposed work will support research through information dissemination strategies that enhance information delivery of research participation and informed consent to underserved, overlooked groups such as deaf people who use ASL.

迫切需要一个以用户为中心的、可获取的知情同意工具包。的此G 08应用程序的目的是开发和部署可访问的知情同意应用程序- 基于工具包，支持两个目标受众：1）希望参加研究和2）临床研究协调员（CRC）和主要研究者（PI）没有资源使他们的知情同意材料可供潜在的参与者是聋人。这个项目风险低，影响大，因为它建立在领导团队的基础上。在医疗服务不足的聋人社区进行研究。知识来自因此，拟议的活动将有很大的潜力为聋人带来有用的、可用的资源。签署人和希望参与研究或临床试验的人。最后，由此产生的资源将填补NLM战略目标1和2中优先考虑的差距。计划目标，因为拟议的工作将通过信息支持研究传播战略，加强研究参与的信息传递，知情同意服务不足，被忽视的群体，如聋人谁使用美国手语。