Addressing health disparities among understudied women in the deaf and hard of hearing population

解决失聪和听力障碍人群中未被充分研究的女性的健康差异

• 批准号: 9909299
• 负责人: Poorna Kushalnagar
• 金额: $ 19.94万
• 依托单位: GALLAUDET UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2015
• 资助国家: 美国
• 起止时间: 2015-09-01 至 2021-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9909299
• 关键词: Address; Administrative Supplement; Adult; American Sign Language; Clinical Trials; Data Collection; Funding; Health; Knowledge; Language; Linguistics; Measurement; Measures; Outcome Measure; Outcomes Research; Parents; Patient Outcomes Assessments; Patient-Focused Outcomes; Patients; Population; Protocols documentation; Psyche structure; Reporting; Research; Sampling; Surveys; System; Translations; United States National Institutes of Health; Woman; Women' s Health; deaf; deafness; hard of hearing; health disparity; innovation; older women; public health relevance; social

The purpose of the administrative supplement (NOT-AG-18-039) is to expand existing research to focus on Deaf Women Health. Current widely used NIH-funded patient reported outcome measurement systems (PROMIS) include domains that assess global, physical, mental, and social health from the patient’s perspective. PROMIS is heavily dependent on English, which is a serious barrier to DHH patients who use American Sign Language (ASL) and demonstrate low English proficiency. We addressed this knowledge gap through innovative cross-cultural translation of patient reported survey in ASL and primary data collection from a large representative sample of adults with early deafness. In this administrative supplement for women health, we will follow the same protocol, as in the parent R01, to culturally adapt and linguistically validate women health-related measures. The sample will include 100 DHH mid-to-older women, providing adequate power for group analyses. This is further described in the research strategy section.

行政补充（NOT-AG-18-039）的目的是扩大现有的 研究重点是聋人妇女的健康。目前广泛使用的NIH资助的患者报告 结果测量系统（PROMIS）包括评估全球，物理， 从病人的角度来看心理和社会健康。PROMIS严重依赖于 英语，这是使用美国手语（ASL）的DHH患者的严重障碍 英语水平不高我们通过以下方式解决了这一知识差距： ASL患者报告调查和原始数据跨文化翻译创新 从早期耳聋成年人的大样本中收集。在这 妇女健康的行政补充，我们将遵循相同的协议，因为在父母 R 01，在文化上调整和在语言上验证与妇女健康有关的措施。样品 将包括100名卫生部的中老年妇女，为群体分析提供足够的力量。这 在研究策略一节中作进一步说明。