Deaf Sign Language Users' Experiences in Seeking Health Information

 描述(申请人提供)：NCI的健康信息全国趋势调查严重依赖英语，这给使用美国手语(ASL)的聋人患者带来了严重的语言障碍。提供对无障碍技术和服务的用户有效的ASL和英语提示，将为了解聋人将互联网用于与健康有关的目的的趋势和改进健康交流模式提供重要的见解，从而在服务不足的聋人中改善个人和公共健康。这项研究计划建立在库沙尔纳加博士之前关于聋人健康交流和生活质量结果的研究基础上。拟议的研究计划涉及一个发展部分(翻译)和一个研究部分(健康信息)。具体目标包括(1)翻译和实施ASL中的HINTS调查和(2)描述聋子群体使用互联网获取癌症健康信息的趋势。这项研究将由一个研究团队进行，研究团队包括：一名在DHH人群中具有健康沟通和生活质量结果专业知识的职业早期调查员，一名在癌症控制和聋人社区推广方面具有专业知识的高级调查员，一名生物统计学家，以及一支聋人/HH本科生研究团队。这项研究的结果将使人们更好地了解将互联网用于与健康相关的目的的趋势，这一趋势可能在不同的聋子群体中有所不同。该应用程序的目标与NIDCD 2012-2016年有关改善人类交流结果和减少健康差距的战略一致，预期的结果将支持改进和完善使用美国癌症协会为聋人消费者提供的健康视频的健康网站，目标是为与健康相关的目的最大限度地提高传播效率。

 DESCRIPTION (provided by applicant): NCI's Health Information National Trends Survey is heavily dependent on English, which present serious language barriers to Deaf patients who use American Sign Language (ASL). The availability of HINTS in ASL and English and such that is valid for users of accessible technology and services will provide important insights on understanding the trends in Deaf people's use of the Internet for health-related purposes and improving health communication models that will lead to better personal and public health within the underserved deaf population. The research plan builds on Dr. Kushalnagar's prior research on health communication and quality of life outcomes with Deaf population. The proposed research plan involves a development component (translation) and a research component (health information). Specific aims include (1) translating and implementing HINTS survey in ASL and (2) describing the trends in Deaf sub-groups' use of the Internet for cancer health information. The study will be conducted by a research team that includes: an early career investigator with expertise in health communication and quality of life outcomes in DHH population, a senior investigator with expertise in cancer control and Deaf community outreach, a biostatistician, and a team of Deaf/HH undergraduate student researchers. Results from this study will provide a better understanding of the trends in using the Internet for health-related purposes, which may vary across Deaf sub-groups. The goals of this application are consistent with the NIDCD 2012-2016 strategies related to improving outcomes for human communication and reducing health disparities, and expected findings will support improvement and refinement of health websites that utilize ASL cancer health videos for Deaf consumers, with goals of maximizing effectiveness of dissemination for health-related purposes.