A mixed methods study of the intersection of oral health, culture, and autism in African American families

非裔美国家庭口腔健康、文化和自闭症交叉点的混合方法研究

• 批准号: 10295755
• 负责人: Dominique Hidalgo Como
• 金额: $ 4.68万
• 依托单位: UNIVERSITY OF SOUTHERN CALIFORNIA
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-08-01 至 2022-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10295755
• 关键词: Address; Adolescent; African American; Americas; Attitude; Awareness; Behavior; Biological Factors; Caregivers; Caucasians; Child; Communication; Communities; Data; Data Analyses; Deglutition; Dental; Dental Anxiety; Dental Care; Dental caries; Dentists; Development; Diet Habits; Disabled Children; Educational process of instructing; Ensure; Epidemic; Expressed Emotion; Family; Fellowship; Fibrinogen; General Anesthesia; Goals; Grant; Habits; Health; Health Knowledge, Attitudes, Practice; Health Professional; Health Services; Health Services Accessibility; Healthcare; High Prevalence; Impairment; Individual; Insurance Coverage; Intervention; Interview; Knowledge; Lead; Measures; Methods; Minority; Motivation; Mouth Diseases; Nutritionist; Occupational Therapist; Oral health; Paper; Parents; Participant; Patients; Persons; Physical environment; Population; Price; Process; Program Development; Program Sustainability; Provider; Public Policy; Qualitative Research; Quality of life; Questionnaires; Recommendation; Reporting; Research; Research Design; Research Project Grants; Sampling; Sedation procedure; Sensory; Services; Smell Perception; Social Environment; Social Workers; Structure; Surgeon; Surveys; Taste Perception; Tooth Diseases; Tooth structure; Touch sensation; Training; Training Activity; Vulnerable Populations; Writing; aged; autism spectrum disorder; autistic children; base; burden of illness; community based participatory research; cost; disability; ethnic minority population; experience; health care disparity; health disparity; improved; insight; medical specialties; neglect; oral care; public health insurance; research study; restrictive eating; routine care; skills; social structure; sound; therapy development; tool

Project Summary/Abstract This project will address the important yet often neglected component of overall health, oral health. Unfortunately, oral health care disparities persist for children from ethnic minorities, as well as for children with special health care needs, like autism spectrum disorders (ASD). Several known factors (i.e., familial, social, and structural) serve as barriers to oral health for Black/African American children. Although public policies have attempted to address these obstacles, disparities persist. Similarly, many children with disabilities, such as ASD, encounter significant barriers to the receipt of sound oral care. Impairments in communication, sensory sensitivities, uncooperative behaviors, restrictive eating habits, and dental fear and anxiety contribute to diminished oral care. As a result, many children with ASD require the use of sedation or general anesthesia for routine dental procedures. Currently, no studies have examined the intersection of ASD, Black/African American culture, and oral health practices. The proposed project will address this gap by achieving the following set of aims: 1. Identify the oral health knowledge, attitudes, and practices of Black/African American parents/caregivers of children with and without ASD. 2. Develop a deeper understanding of the barriers, facilitators, familial and cultural factors that inform oral health practices of Black/African American families with children with ASD. 3. Identify gaps in oral health care for Black/African American children with and without Autism and propose recommendations for improvements across levels of influence to enhance oral health. Research participants will be 120 (survey) and 8 – 12 (interview) Black/African American parents/caregivers of children aged 4-14 years, with and without ASD. The oral health disparities that exist for Black/African American children with and without disabilities deserve a greater spotlight because of the importance of oral care to overall health, engagement, and function. In order to accomplish these research project aims, I will engage in several selected trainings activities, which will provide me with the skills, tools, and expertise to conduct translational and transformative research. The following are short-term goals for my fellowship training: 1) Develop a deeper understanding of the multiple underpinnings of health disparities; 2) Gain experience and skills in qualitative research and community-based participatory action research; and 3) Develop skills in teaching, grant-writing, designing research studies, data analysis, and disseminating results for transformative change.

项目总结/文摘

项目成果

Exploring Eating Challenges and Food Selectivity for Latinx Children with and without Autism Spectrum Disorder Using Qualitative Visual Methodology: Implications for Oral Health.

• DOI: 10.3390/ijerph18073751
• 发表时间: 2021-04-03
• 期刊: International journal of environmental research and public health
• 作者: Floríndez LI;Floríndez DC;Price ME;Floríndez FM;Como DH;Polido JC;Baezconde-Garbanati L;Pyatak E;Cermak SA
• 通讯作者: Cermak SA

Differing interpretations of health care encounters: A qualitative study of non-Latinx health care providers' perceptions of Latinx patient behaviors.

对医疗保健遭遇的不同解释：对非拉丁裔医疗保健提供者对拉丁裔患者行为看法的定性研究。

• DOI: 10.1371/journal.pone.0236706
• 发表时间: 2020
• 期刊: PloS one
• 影响因子: 3.7
• 作者: Floríndez,LucíaI;Floríndez,DaniellaC;Como,DominiqueH;Secola,Rita;Duker,LeahIStein
• 通讯作者: Duker,LeahIStein

Oral Care Knowledge, Attitudes, and Practices of Black/African American Caregivers of Autistic Children and Non-Autistic Children.

• DOI: 10.3390/children9091417
• 发表时间: 2022-09-19
• 期刊: CHILDREN-BASEL
• 影响因子: 2.4
• 作者: Como, Dominique H.;Florindez-Cox, Lucia, I;Duker, Leah I. Stein;Polido, Jose C.;Jones, Brandi P.;Lawlor, Mary;Cermak, Sharon A.
• 通讯作者: Cermak, Sharon A.

Toothbrushing and Oral Care Activities of Autistic and Non-Autistic Latino Children.

• DOI: 10.3390/children9050741
• 发表时间: 2022-05-18
• 期刊: CHILDREN-BASEL
• 影响因子: 2.4
• 作者: Florindez, Lucia, I;Como, Dominique H.;Florindez, Daniella C.;Florindez, Francesca M.;Law, Evelyn;Polido, Jose C.;Cermak, Sharon A.
• 通讯作者: Cermak, Sharon A.

Oral Health Barriers for African American Caregivers of Autistic Children.

• DOI: 10.3390/ijerph192417067
• 发表时间: 2022-12-19
• 期刊: INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH
• 作者: Como, Dominique H.;Florindez-Cox, Lucia, I;Duker, Leah I. Stein;Cermak, Sharon A.
• 通讯作者: Cermak, Sharon A.